Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

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Quick Links: Resources for You

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The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Friday, March 7, 2025 - 5:30pm

The time is now to save your seat for the 2025 Patient and Family Conference in Rockville, MD! Plan to attend on March 8, 2025, in Rockville, MD....

March for Marrow and Community Fundraisers»

Saturday, April 5, 2025 - 8:00am

March for Marrow TX is back! Welcome to our third in-person March for Marrow TX, The Woodlands, since 2019! Our 15th Annual March for Marrow will be...

Stories of Hope»

Ashley Numbers

September 16 through December 20 will stand out in Ashley’s mind. Forever. These are the days she spent in the hospital with her feisty...

Professional Conferences»

March 6, 2025

2025 AAMDSIF Bone Marrow Failure Summit: Translating Science to Advance Patient Outcomes Since it was founded in 1983, AAMDSIF has...

Online Library

Webinars »

February 5, 2025

In this webinar, Dr. Akriti Jain discusses research most relevant to patients reported over the past year on the biology and treatment on...

Conference Materials »

Saturday, October 19, 2024 - 7:30am

Due to the impact on the Tampa, Florida community and surrounding areas by Hurricanes Helene and Milton, the AAMDSIF Tampa Patient and Family...

Research Articles »

Originally published: November 18, 2024

This study describes the health-related quality of life (HRQoL) and symptom-specific functional impairment of patients with paroxysmal nocturnal...

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I’m proud to support AAMDSIF—will you join me?

"My name is Brianne, and 2024 marks my ninth year as a donor. Donations for AAMDSIF help patients like me living with bone marrow failure at every critical point in our journey. I'm proud to be a donor to the Foundation. I'm able to donate annually because my friends and family support me through a golf outing that I host called "Fighting PNH…Rare but Real" (pictured here). We need your help to make a difference. Join me and donate today."

Your donation supports our mission »