Patient Education Council

Patient Education Council

What is the Patient Education Council?

The AA&MDSIF Patient Education Council (PEC) was created in 2008. Its purpose is to serve as a resource to the AA&MDSIF staff in the development and review of patient education materials and programs. Members of the PEC include doctors, nurses, patient educators, patients and caregivers, all of whom have an interest in supporting the needs of people living with aplastic anemia, MDS, PNH or another bone marrow failure disease. Review by the PEC provides patients and their families with the full confidence that they are receiving the most accurate, reliable and up-to-date information from the Foundation.

What is the Patient Education Council “Approved” seal? 

Each newly developed patient education booklet, brochure or other piece of printed program material is fully reviewed and approved by members of the AA&MDSIF Patient Education Council (PEC). This seal lets you know that the content of this product or program meets the highest standards of quality, accuracy, and reliability.

Chairman David Margolis, MD

David J. Araten MD

Eyal Attar, MD   

Maria Baer, MD

Robin Brannon

Susan Carson, RN, MSN, CPNP

Kenneth Cooke, MD

Amanda Foisy

Ilene Galinsky, MSN, APRN-BC

Norma Good

Steven Gore, MD

Lisa Gruber

Eric Hodies

Paige Jamieson    

Joan Latsko, MSN, CRNP, OCN, AOCNP

Rachael Otto

Lynda Payne

Olga (Nunez) Rios RN, BSN

Larry Sauger

Isabel Schuermeyer, MD

David Steensma, MD

Valerie Sun

Jim Thomas

Mellissa Tighe

Barbara Weinstein, RN, BSN