pre-recorded aplastic anemia, MDS and PNH webcasts
Hope, Steps & A Cure is a fun & festive walk in your own community to raise awareness about bone marrow failure diseases while raising much needed funds for programs & services to help patients & families. LEARN HOW to organize your own walk -- or participate in an upcoming walk.
When you are diagnosed with a bone marrow failure disease, you may start thinking about health insurance in a new light. This section provides guidance and advice so you can better navigate your insurance and understand your rights under your plan and your rights under state and federal law. LEARN MORE.
URGE sponsorship and support of H.R. 1230, the Bone Marrow Failure Disease Research and Treatment Act of 2009.
LEARN more about this important legislation. READ the bill and CHECK to see if your Representative has signed on as a cosponsor. (60, as of 7/22/10)
