2010 Patient and Family Conferences

We strongly encourage you to attend one of these live events if you or your loved one has been diagnosed with MDS or aplastic anemia within the last few years. Information you learn should be shared with your personal healthcare team.

One-Day MDS Conferences

Living with MDS conferences will provide up-to-date information on the diagnosis and treatment of MDS, along with sessions aimed at optimizing physical and emotional health before, during and after treatment. These conferences will also offer an opportunity to meet other patients and their families. Plenty of time will be left for questions. The conference will generally run from 9:00 am until 3:30 pm. Registration is now open for Chicago and New York.

 

October 16, 2010	New York, NY
September 25, 2010	Chicago, IL
June 19, 2010	Seattle, WA
May 22, 2010	Houston, TX

Aplastic Anemia Updates

Updates will cover the most current thinking on the treatment of aplastic anemia, provided by experienced medical experts. Plenty of time will be left for questions. Time will also be included to meet other patients and their families. The Update program will generally run from 4:30 pm until 6:00 pm. Registration will be available about six weeks prior to each conference date.

October 16	New York, NY
September 25	Chicago, IL
June 19	Seattle, WA (included as part of the main conference)
May 22	Houston, TX

These gatherings will bring hundreds of patients and their families together with a selection of the world's most distinguished medical experts in bone marrow failure diseases and their treatment.

National Patient and Family Conference

Hundreds of patients and families gathered at the Hyatt Regency in Bethesda, Maryland, just outside Washington, DC,  Saturday, July 10 – Tuesday, July 13, 2010 to meet top experts on aplastic anemia, MDS and PNH. They learned directly from leading experts about the most current thinking on the bone marrow failure diseases, their diagnosis and treatment. An array of "living well" presentations on topics like beating fatigue, navigating health insurance and being your own best advocate were also included. In addition, attendees also had the opportunity to meet other patients and families in specially designed workshops allowing everyone the opportunity to connect with one another and share, not only knowledge, but concerns and questions.