AA&MDSIF Press Releases

Current and archived press releases appear below.  This information is open to members of the media and the general public.  Contact John Huber at 800.747.2820 or Huber@aamds.org  for comments and a press kit. 

07/23/2008 - Two Mons Tied Together by Daughters' Deaths to Same Rare Disease Find Common Ground in Search for a Cure

05/23/2008 - BGB Motorsports Inspired to Fast Track Awareness for Aplastic Anemia & MDS at Lime Rock Park Memorial Day Weekend

07/29/2007 - Key Members of Ways and Means Committee Call for Preservation of Medicare Coverage of ESAs for MDS Patients

05/14/2007 - AA&MDSIF ANNOUNCES NEW EXECUTIVE DIRECTOR

04/29/2007 - AA&MDSIF CALLS ON CONGRESS TO INCREASE FUNDING FOR NIH BY 6.7% - Budget Cuts Will Reduce Research Grants and Clinical Trials

03/19/2007 - Patients with Rare Bone Marrow Disease for the First Time Have a Treatment Option

03/06/2007 - AA&MDSIF Offers Support to Newly Diagnosed Aplastic Anemia Patients

02/12/2007 - FDA Approves MDS Drug VIDAZA (azacitidine) for IV Administration

06/07/2006 - Nationwide Study of MDS

05/18/2006 - The passing of Robert Carroll, Chairman, AA&MDSIF

05/03/2006 - Dacogen (decitabine) approved by the FDA for patients with all subtypes of myelodysplastic syndromes (MDS)

04/01/2006 - 2006 Research Grants Awarded by AA&MDSIF

03/20/2006 - Senate Approves NIH Funding Amendment

03/07/2006 - Nurses Conference on Bone Marrow Disease:

01/31/2006 - 5000+ mile quest brings mother-daughter team to Delaware

12/28/2005 - Revlimid approved by the FDA

12/22/2005 - President approves cord blood registry bill

11/03/2005 - Oral iron chelator ExjadeŽ approved by FDA

10/17/2005 - New Studies on Bone Marrow Failure Diseases

09/26/2005 - AA&MDSIF launches a new look for its web site

09/15/2005 - AA&MDSIF applauds ODAC recommendation to approve Revlimid

07/14/2005 - Senate Appropriations Committee calls for expanded NIH research efforts into bone marrow failure diseases

06/17/2005 - Bone Marrow Failure Disease Resolution introduced in the U.S. House of Representatives

04/27/2005 - Foundation expresses concern about NIH Conflict of Interest Rule to Senate Labor-HHS-Subcommittee

02/23/2005 - Bone Marrow Failure Scientific Symposium

01/03/2005 - Foundation expresses condolences to family and friends of Congressman Robert Matsui

12/01/2004 - Aplastic Anemia Awareness Week December 1-7

12/01/2004 - AA&MDSIF announces new Medical Advisory Board Chairman

08/24/2004 - AA&MDSIF conference webcast features discussion by leading experts

04/12/2004 - Patients and doctors collaborate at conference on bone marrow failure disease

03/30/2004 - AA&MDSIF announces funding for two research awards for 2005

01/28/2004 - Roberto Parada and the AA&MDSIF Thank Blood Donors and Encourage New Volunteer Blood Donors

12/05/2003 - Aplastic Anemia Survivorship Drastically Improved Over Last Two Decades

11/05/2003 - Aplastic Anemia and MDS International Foundation (AA&MDSIF) to Be Patient Support Group for Bone Marrow Failure Clinical Research Center

10/13/2003 - AA&MDSIF Encourages Individuals Across the Country To Celebrate 'National Make A Difference Day' by Donating Blood, Platelets,and Bone Marrow

09/11/2003 - Aplastic Anemia & MDS International Wages Public Awareness Campaign During 20th Anniversary Year, 2002-2003

03/15/2003 - Conference Will Explore Latest Treatment Breakthroughs For Aplastic Anemia, MDS, PNH

05/23/2002 - Conference Will Explore Latest Treatment Breakthroughs for Aplastic Anemia, MDS, PNH

10/29/2001 - WTC Benzene Exposure

05/30/2001 - U.S. Rep. Joseph Moakley Joined Thousands Who Lost Battle with Rare Bone Marrow Failure Disease