Our patients, families, and caregivers have been asking us for more ways to learn about rare blood cancers and bone marrow failure diseases. So, we're coming to you today, thanks to generous support from individual donors and our corporate partners.
Dr. Mikkael Sekeres describes why patients should request a second opinion about their bone marrow failure disease or blood cancer. He also shares his own perspective about asking for a second opinion, recommending that patients do select this option.
What type of documentation do you need to take advantage of the Family Medical Leave Act? Attorney Chris Mills answers questions from Leigh Clark, Director of Paitent Services at AAMDSIF.
Learn about the Americans with Disabilities Act and how it applies to patients. Attorney Chris Mills shares his expertise in this episode.
What is "Chemo Brain" and how is it managed? Find out the best approaches for dealing with this common side effect in this recording with Dr. Jorg Dietrich.
Dr. Bhumika Patel explains why meningitis can occur in patients with PNH and how it is both treated or prevented.
When should patients be vaccinated, and with which version of the COVID-19 Vaccine? Learn all about how each type of vaccine works and which patients with bone marrow failure diseases should be vaccinated.
What is a clinical trial? Why should a patient consider participating in one? Olga Rios, RN, offers a brief explanation in this recording.
Christina Cline, RN, at the University of Florida Health Cancer Center, describes one of the common symptoms of treatment for bone marrow failure diseases: fatigue.
Learn how patients can communicate about their fatigue with their health care team as well as which strategies may help.
What does the diagnosis, Intermediate-Risk MDS mean? Learn from Myelodysplastic Syndromes expert, Dr. Swapna Thota, in this recording.
Dr. Joshua Zeidner explains why it is critical for patients to receive an accurate diagnosis for MDS, or Myelodysplastic Syndromes. He describes the steps to determine the presence of the disease, and also discusses some of the treatments available.
Special thanks to Abbvie and Taiho Oncology