Leadership Awards

About the Awards: 
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Leadership in Philanthropy: Recipients are selected for their continued and consistent generous financial support of AA&MDSIF programs and services. Such support may be through their personal charitable giving or through achievement in fundraising that draws in the support of a larger community.

Leadership in Science: Recipients are selected for their contributions to the fields of bone marrow failure disease treatment and/or research. Nominees are considered for their impact on patients and families affected by aplastic anemia, MDS and PNH, and/or their contributions through research to increasing knowledge and understanding about these diseases. Additional consideration is given to those who have demonstrated a commitment to AA&MDSIF.

Leadership in Service: Recipients are selected for their demonstrated commitment of time, energy and ideas that raise awareness for AA&MDSIF and bone marrow failure diseases. Their outreach to engage the public and/or AA&MDSIF patients and families results in new levels of achievement for AA&MDSIF.

 

Award Year: 2013

Mikkael A. Sekeres, MD, MS
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Associate professor of medicine and Director of the Leukemia Program, Cleveland Clinic Taussig Cancer Institute
Leadership in Science
Dr. Sekeres is associate professor of medicine and Director of the Leukemia Program, Department of Hematologic Oncology and Blood Disorders with the Cleveland Clinic Taussig Cancer Institute, Ohio. He earned a medical degree and a master’s in clinical epidemiology from the University of Pennsylvania School of Medicine. He completed his postgraduate training at Harvard University, finishing an internal medicine residency at Massachusetts General Hospital and a fellowship in hematology-oncology at the Dana-Farber Cancer Institute in Boston. A frequent speaker and presenter for AA&MDSIF patient and family conferences and webinars, and webcasts and videos for both patients and health professionals, he is co-chair of the AA&MDSIF medical advisory board (MAB), and also co-chair of the MDS Clinical Research Consortium.
Neil Horikoshi
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Former Chair, AA&MDSIF Board of Directors
Leadership in Service
Neil Horikoshi is a past chairman of the AA&MDSIF Board of Directors, and led its transformation to a strategic and policy making governance board. He is an Advisory Council member for both the Asian American Justice Center (AAJC) and the Asian Pacific American Institute for Congressional Studies (APAICS).  He also serves on the a Board of Governors for the Go for Broke National Education Center, and as an Advisory Council member for the Bill & Melinda Gates Foundation’s Gates Millennium Scholars Program.    Neil Horikoshi joined the Asian & Pacific Islander American Scholarship Fund (APIASF) in 2008 as the president and executive director after a distinguished 30-year career at International Business Machines Corporation (IBM), where he served in a variety of legal and executive management positions in the United States and Asia Pacific.
Edward P. Evans Foundation
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Charitable foundation
Leadership in Philanthropy
The Edward P. Evans Foundation has been awarded the Leadership in Philanthropy award in recognition for its support of the AA&MDSIF MDS Clinical Research Consortium. The MDS Clinical Research Consortium, a six-institution consortium designed to undertake unique studies and trials to advance treatments and improve outcomes for patients with myelodysplastic syndromes (MDS), was established in 2012. The Consortium enlists multiple MDS clinical research centers and fills a major gap in MDS-related clinical research in the United States by providing a new “critical mass” of patients and patient data to support the evaluation of promising new compounds, epidemiological studies, and translational studies leading to new classifications, treatments, and procedures. In this collaborative environment, enhanced by expanded access to patient data, tissue samples, and the use of a standardized patient work-up, research leading to potentially beneficial outcomes for patients is accelerated.  The Edward P. Evans Foundation, whose primary mission is to support transformational and collaborative medical research in the areas of myelodysplastic syndromes and acute myeloid leukemia, supported the five-year, $16 million initiative. This is believed to be the largest ever single award to support MDS clinical research.

Award Year: 2011

Earl J. Goldberg Chapter of AA&MDSIF
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Leadership in Philanthropy
For over 30 years, the friends of Allen and Harriet Goldberg raised money to help patients and families with aplastic anemia in honor of their son, Earl, who passed away at the age of 14 from the disease.  Some of the $171,000 they raised supported an AA&MDSIF Research Grant to Dr. Seth Corey of UT-MD Anderson Cancer Center for his study of the effects of an enzyme on controlling the demise of blood cells. Earl and his family inspired patients, families and friends across Chicago and nationwide to raise awareness and support to fight this bone marrow failure disease. As AA&MDSIF has grown to reach more people than ever before, and local chapters are being transformed into Communities of Hope, we want to pay tribute to the generosity, leadership and commitment of everyone involved over the years in this tremendous volunteer effort.
Tony Sanfilippo
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Leadership in Service
Since 1997, Tony has served on the AA&MDSIF Board of Directors, bringing his professional expertise from the financial and investment world to the organization.  But it was his personal experience as the parent of a young daughter with aplastic anemia that cemented Tony’s and his wife, Briget’s, commitment to helping other patients and families. Rachel, now an adult, was successfully treated with ATG and has been medication free for over a decade. Tony’s involvement has grown from early involvement in the AA&MDSIF’s Earl J. Goldberg Chapter in Chicago in the 1990s, where his family lived when Rachel was diagnosed, to now serving as Treasurer on AA&MDSIF’s Board. Tony’s leadership has contributed to the long-term financial strength of the organization and allowed for its growth to serve more patients and families with more programs. He and Briget have also matched his service to the organization with their philanthropic leadership, giving generously over the years. Now living in Westport, CT, AA&MDSIF is pleased to recognize Tony Sanfilippo for his years of service in this way. 

Award Year: 2010

Jaroslaw Maciejewski, M.D., Ph.D.
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Chairman of Translational Hematology and Oncology Research at the Cleveland Clinic Taussig Cancer Institute, and a professor of medicine at Lerner College of Medicine at Case Western Reserve University
Leadership in Science
Dr. Maciejewski is recognized for his leadership in finding better treatments and a cure for bone marrow failure diseases, as well as his commitment to cultivating a new generation of researchers in his lab.  He also provides the highest quality care and compassion to his patients, and the AA&MDSIF community. His clinical areas of expertise include bone marrow failure syndromes - aplastic anemia, MDS, large granular lymphocyte leukemia, PNH - and myeloid malignancies. His research includes the molecular pathogenesis of these disorders and various specific aspects of stem cell biology, genetics, cytogenetics and immunobiology.
Jo Alley and the Volunteers of AA&MDSIF Michigan
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Leadership in Philanthropy
Led by Jo Alley and her husband, Ron, this dedicated group of volunteers has raised almost $125,000 through their fundraising events over the past 15 years including their Boot, Scoot and Boogie evening and the sales of holiday cards raising awareness about bone marrow failure diseases.  This tight-knit group of patients, families and friends continues its work in memory of loved ones lost to these diseases including Jo and Ron’s son Shawn – a 25-year aplastic anemia survivor who lost his battle in 2010.
Steven C. Groft, Pharm.D.
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Director of the Office of Rare Diseases (ORD), National Institutes of Health (NIH)
Leadership in Service
Dr. Groft has been focusing attention on rare and orphan diseases like those AA&MDSIF has spent the past 27 years fighting. His leadership and vision have brought often-neglected and little known diseases into the spotlight as deserving of clinical attention and financial resources for research. Together, 25 to 30 million people in the United States have a rare disease, millions more are caring for a loved ones with rare diseases, and millions more as employers and friends are impacted. Highlights of his work include time at the Food and Drug Administration in the Office of Orphan Products Development, and at the Department of Health and Human Services as Executive Director of the National Commission on Orphan Diseases. 

Award Year: 2009

Richard Stone, M.D.
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Clinical Director of the Adult Leukemia Program at the Dana-Farber Cancer Institute, Attending physician at Brigham and Women’s Hospital, and Associate Professor of Medicine at Harvard Medical School
Leadership in Science
Dr. Stone cares for patients with acute and chronic leukemias, myelodysplasia and myeloproliferative disorders.  Dr. Stone conducts clinical and translational research with the goal of deriving better outcomes for patients with these disorders.  His laboratory research focuses on the mechanism of leukemic cell differentiation, with the ultimate goal of producing new cancer therapies.
Mary Ellen & William Madden
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Leadership in Philanthropy
Mary Ellen and Bill Madden, and their family, have given with unparalleled generosity to AA&MDSIF over the past two decades since they lost their daughter Mary Pat Madden-Grieshaber to aplastic anemia. They, along with son, Marty Madden and daughter, Margie Ward, have been champions of AA&MDSIF since its early days.