Health Professionals

Partners in Patient Care

The mission of The Aplastic Anemia & MDS International Foundation is to bring answers, support, and hope to patients with aplastic anemia, myelodysplastic syndromes, and paroxysmal nocturnal hemoglobinuria. We realize that health care professionals are partners in this process, and we want to do our part by providing information that helps you and your healthcare team care for patients with these life-threatening diseases.

social workers

Note for social workers: AA&MDSIF understands the important role social workers play in the well-being of patients and their families. This is why providing education opportunities to social workers is a key strategy in fulfilling the AA&MDSIF mission. Professional education helps with career advancement, licensure, job satisfaction, and staff retention. Our programming is driven by rigorous, ongoing needs assessment of professionals augmented by input from a committee of experts across diverse disciplines. 

AA&MDSIF is now providing continuing education credits for social workers across health disciplines. Credit is provided through six regional patient and family conferences, which are unsurpassed in their breadth and quality. Through these efforts, we assist and advance the knowledge base of individuals as well as the systems in which they work and the patients for whom they care.

Click here to sign up now for a free patient and family conference near you!

Treating MDS Toolkit

MDS ToolkitThis toolkit includes resources for healthcare providers to communicate with and support patients with MDS. A counseling guide, patient information sheets and other materials will help you share the necessary information efficiently and effectively.

What is MDS? iPad App

MDS ToolkitThis educational resource can help healthcare providers teach their patients about myelodysplastic syndromes (MDS). Complete with a video, FAQs, and educational materials, this app includes information on low blood counts, risk levels, treatments, side effects, and preparing for office visits.

MDS, MDS/MPN, and MF Reference

MDS MPN card This free reference card can be used to draw a more clear distinction between myelodysplastic syndrome (MDS), myeloproliferative neoplasms (MPN), and myelofibrosis. Use this tool to help risk stratify patients.

Mobile App

Mobile AppThis MDS Stratification and Treatment app is free and available for all smartphone platforms and iPad includes medical calculators for IPSS, WHO, FAB and WPSS.

eInsider for Health Professionals

eInsider for Health Professionals A quarterly electronic newsletter for health professionals featuring research updates, practical treatment guidance, CME opportunities, and patient education resources. Sign up today.

Continuing Medical Education

Continuing Education AA&MDSIF produces, sponsors and endorses live and web-based CME programs for medical professionals who treat patients with bone marrow failure diseases.

Nursing Network

Nursing Network Connect with nursing professionals who have years of experience caring for MDS patients. Our experts answer your questions related to managing MDS and supporting patients and caregivers.

Information Packet

Patient EducationRequest a free packet of patient education materials online or print an order form to fax or mail for bulk orders.

Patient Resources

Patient education Learn more about our free programs and educational resources for patients, including treatment tracking tools, education materials, patient and family conferences, live webcasts, and Online Learning Center.

Research and Grants

Research and Grants Each year, AA&MDSIF invites researchers to apply for two-year grants of $30,000 per year to advance the understanding and treatment of bone marrow failure disease.

Financial Resources for Patients

Financial Resources for Patients Access to financial and support resources for patients and families.

 

Questions?

For more information about AA&MDSIF resources and programs for health professionals, contact Alice Houk, at (301) 279-7202, ext. 101.