Members of the Media

Every day, at least 50 people in the United States are diagnosed with a bone marrow failure disease. Yet when someone is stricken, it is likely that they have never even heard of their disease. Because these are such rare diseases, it is vital that patients receive up-to-date medical information, expert treatment, and emotional support.

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is an independent nonprofit organization whose mission is to support patients, families, and caregivers coping with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases.

AA&MDSIF:

  • Provides educational materials, medical information, and access to one-to-one support via a global network of volunteers who offer hope to those struggling with bone marrow failure diseases
  • Builds awareness and knowledge of bone marrow failure diseases among medical and healthcare professionals and the general public
  • Raises public and private support for research to improve patient treatments, restore patients to health, and ultimately, to find cures for bone marrow failure diseases

The foundation's ongoing commitment and dedication to this mission is based on our core values of fairness, integrity, transparency, respect, and responsibility.