Patients

We understand that coming to grips with serious health news is a major challenge. But once the initial shock of a bone marrow failure diagnosis wears off, the best thing you can do is learn as much as possible about your disease. Knowledge is power, and understanding what’s happening to your body will help you remain focused and hopeful. 

Learn About Your Disease

Once the initial shock of a bone marrow failure diagnosis wears off, the best thing to do is learn as much as possible about your life-changing disease. Knowledge is power, and learning about what’s happening to your body will help you remain focused and hopeful. Here are the basics of aplastic anemia, MDS and PNH with links you can follow to more detailed descriptions.

Know Your Treatment Options

Because you play a critical role in how well treatment works for you, you need to learn all you can about your disease and the available treatments for it. This overview of treatment options for aplastic anemia, MDS and PNH will get you started and direct you to where you can learn more.

Control Your Care

Taking control of your care means being a proactive patient and standing up for yourself in the health care decision-making process. We teach patients and families proven strategies for becoming strong advocates, which is the best way to ensure that you're receiving the care and treatment you need.