PNH Awareness Week 2015 | Aplastic Anemia & MDS International Foundation Return to top.

PNH Awareness Week 2015

Introductory image: Patient conference - participants

Awareness Week 2015Are you or a loved one affected by PNH (paroxysmal nocturnal hemoglobinuria)? 

PNH Awareness Week is September 14 - 20, 2015!

Help us raise awareness in your community by giving a few hours of your time.  We need your help to make an impact during this special week devoted to raising awareness in communities across the country about PNH, how to get help, and what AA&MDSIF can do to support patients and families.

You can make a difference! It can be as easy as volunteering at a bone marrow drive, sponsoring a dress down day at the office, or organizing an awareness/fundraising event at a local restaurant.

A great way to make a difference is to participate in the Walk for PNH 2015! Register to walk with family and friends for the September 20, 2015 walk in Riverside Park in New York City! Can't make it to the walk? Register as a virtual walker - and you can still participate by raising funds and awareness.

Also, share your Story of Hope with us. Through a written or video story, tell us about your journey with PNH so that we can share it with other patients and families.

Use this resource center to help you plan what you’re going to do during PNH Awareness Week — the possibilities are endless!  Have questions or need help getting started?  Contact Martha Crews, Community Development Officer, by email or (301) 279-7202 x103. Together, we can raise awareness about PNH in your own community.

Educate  

Educate others on PNH.  Learn what easy things you can do to teach others about bone marrow failure disease. 

Advocate 

Advocate for your own health — and advocate for all affected by PNH.  Learn how you can spread the word. 

Participate 

Participate in a bone marrow/blood drive, volunteer at a drive, or organize your own awareness and/or fundraising event.  Learn how easy it is to participate in or plan an event. 

Celebrate and Commemorate

Celebrate your or your loved one’s survival story, or commemorate and remember loved ones lost. Learn how you can easily share your story with others.

Share with addtoany.com.