Communities of Hope

communities of hope

Would you like to connect with other patients and families in your own town?

AA&MDSIF is building Communities of Hope - volunteer led local support groups - to create an ongoing, local organization supporting patients and families, and raise awareness and support for AA&MDSIF programs that support them. Learn more.

Communities of Hope are built:

  • To connect patients and families with each other to provide a local resource for peer support, information exchange, and education
  • To connect patients and families with each other, and with us, as a means for carrying out AA&MDSIF’s mission
  • To engage volunteers for generating awareness among the patient and health professional community, as well as the greater community in which you live
  • To create advocates, raising support for AA&MDSIF
  • To tap into geographic location to raise support for AA&MDSIF and to help carry out AA&MDSIF’s mission

Each community will look slightly different from another community. It’s up to the members of the local community to decide how they want their group to function. Each community will determine what activities they’d like to participate in – all with the help and support of AA&MDSIF!

Many of these active Communities of Hope function as an enhanced support group.  These groups meet on a regular basis, and speakers are invited to talk on a subject of importance to the group members.  If you live in one of these areas and would like to join your local Community of Hope support group, please contact the volunteer coordinator noted below by email.

Location Volunteer Coordinator
Phoenix Stephanie Cadell
California San Francisco Bay Area (MDS)
Lenn Fechter
Middletown Paige Jamieson
Atlanta Lorenzo Williams
Boise Diane Hakes, LCSW
Chicago (MDS) Kim Jensen
Indiana Indianapolis Sally Debono
Boston Melissa Diaz
Detroit Jessica Chapman
New Jersey Central
Linda Rothstein
New York
New York City Melissa Diaz
North Carolina
Asheville/Henderson Barbara Morgan
Linda Kemper
Janine Kowack
Milwaukee Brandi Wright

In conjunction with the Leukemia and Lymphoma Society (LLS), AA&MDSIF is pleased to let patients and families know about the LLS support group opportunities around the country. These support groups are facilitated by LLS, not AA&MDSIF. If you live in one of these areas and would like to join the support group, please contact the coordinator noted below by email or phone.

Location Volunteer Coordinator
Arkansas Little Rock Meg Boykon
Idaho Boise (Bone Marrow Transplant Only) Megan McCulley
Maine Portland Gayle Bagley
Minnesota Duluth and Robbinsdale LIndsay Anderson
  St. Cloud Janelle Thoreson and Siri Spanier
Julia Canas
Julia Canas

Julia Canas
Las Vegas
Myra Davis-Alston, RN
New Hampshire Concord Gayle Bagley
  Lebanon Gayle Bagley
  Nashua Gayle Bagley
South Dakota Sioux Falls Melanie Hericks
Tennessee Chattanooga Barbara Burk
  Knoxville Barbara Burk
  Memphis Barbara Burk
  Nashville Barbara Burk
Karen Mullin

More Communities of Hope are forming in cities across the U.S.!

We also have Communities of Hope forming in Tampa/St. Petersburg, FL; IN; MInneapolis, MN; St. Paul, MN; Philadelphia, PA; Pittsburgh, PA; and Dallas, TX. If you live in one of these areas and would like to participate or learn more, please contact Patient Educator, Leigh Clark by email or at (301) 279-7202 x140. Want to start one in your hometown?  We can help!