Meet proactive, engaged patients who share their stories so others may benefit. Their stories highlight specific examples and tips for building effective coping and self-advocacy skills, with the goal of living well with bone marrow failure disease.

Share your success story with us. We want to know how you are using self-advocacy tools to become a more powerful patient.

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Stephen King is the kind of man who likes to fix things. “I’m an engineer—we solve problems,” says the clinical software manager from Atlanta, Georgia. “After my diagnosis, I thought, now that you know what it is, let’s fix it. It took a little time to sink in that there was no...
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Linda Payne of Fayetteville, Georgia, has always been a strong self-advocate. A retired nurse practitioner, Linda is familiar with doctors and medical terms and has no trouble asking questions. If she doesn’t know what her doctor is talking about, she just says, “Assume I know...