Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

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Quick Links: Resources for You

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The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Registration for 2025 Patient and Family Conferences will open soon. Until then, please find recorded sessions from the 2024 conferences here.

March for Marrow and Community Fundraisers»

Raising money for AAMDSIF through fundraising events also raises awareness for rare bone marrow failure diseases. Your participation by recruiting friends, family, and coworkers spreads the word and helps fund the mission of AAMDSIF.

Stories of Hope»

Joshua Maliczowski

My diagnosis with Paroxysmal Nocturnal Hemoglobinuria (PNH) was a lot to handle, as is any diagnosis of any kind. I could talk forever in...

Professional Conferences»

November 8, 2024

This symposium will provide updates on the most recent advances in the pathophysiology, diagnosis and clinical management of bone marrow...

Online Library

Webinars »

September 26, 2024

In this webinar, Dr. Alejandro Marinos Velarde discusses the risk factors that can cause post transplant relapse along with treatment and...

Conference Materials »

Saturday, October 19, 2024 - 7:30am

Due to the impact on the Tampa, Florida community and surrounding areas by Hurricanes Helene and Milton, the AAMDSIF Tampa Patient and Family...

Research Articles »

Originally published: September 24, 2024

Introduction: Real-world studies of lower-risk myelodysplastic syndromes (LR-MDS) are limited. We evaluated treatment patterns, clinical...

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Together, we are helping the community.

“Living with a chronic disease can feel isolating. Through AAMDSIF, I was able to connect with the PNH community and form meaningful bonds. Connecting with others who share similar experiences made me feel less alone. Leaving the community better than I found it is important to me. Helping others live their “new normal” is important to me. Your support helps improve patients’ lives and enables them to join a compassionate community of support—a community that I have greatly benefited from firsthand.”

Your donation supports our mission »