Support | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.


Introductory image: Stephanie Hamm poses with two March for Marrow medalists.

Because patients need help in different ways, we offer a variety of support services. From the patient/family HelpLine and support networks to live conferences, online classes and volunteer events, our aim is to positively impact as many lives as we can. Our community members contribute to that goal by sharing their own inspirational Stories of Hope, supporting each other's need to stay positive and motivated.

It’s important for patients to seek consultation with physicians who have experience working with bone marrow failure disease. We’ve developed this interactive map of physician specialists in bone marrow failure disease who have worked with the Aplastic Anemia and MDS International Foundation in a significant way as speakers, writers, editors, and/or advisors.

Virtual and local patient-focused groups play an important role in the lives of bone marrow failure patients. Connection, engagement, comfort, and compassion from peers can be hard to find for people with rare disorders. Support Groups are social settings that provide a level of mutual support that can make all the difference in a patient’s ability to cope and adapt.

The Patient HelpLine has trained and compassionate information specialists ready to answer your questions and provide the support you need.

Connecting with other patients and families can be a powerful and uplifting experience. Our networks let you learn from others, share your journey, get and give support and make new friends.

Here is a list of many resources that may be helpful to patients and their families dealing with a bone marrow failure disease.