Patients can make a difference in the development of future treatments and the improvement of outcomes by participating in research. Â Check out the sections here to discover if any of these options are suitable for you. Â
Clinical Trials and Studies feature bone marrow failure disease treatments and studies.
The Global PNH Patient Registry is more than a versatile online system that securely collects and stores data for medical research; it is an interactive dynamic participant-driven resource that can empower and unite the PNH community through shared knowledge.