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Participate in Research

Introductory image: Patient and Doctor Outdoor Photo

Patients can make a difference in the development of future treatments and the improvement of outcomes by participating in research.  Check out the sections here to discover if any of these options are suitable for you.  

Spotlight Clinical Trials feature bone marrow failure disease treatments and studies.

The Global PNH Patient Registry is more than a versatile online system that securely collects and stores data for medical research; it is an interactive dynamic participant-driven resource that can empower and unite the PNH community through shared knowledge.