In this webinar, Dr. David Dingli presents the latest research presented the American Society of Hematology meeting on Aplastic Anemia and PNH. This is an advanced presentation.
Patient and Family Webinars
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
Register for Upcoming Patient Webinars
| Tue, 06/18/2024 - 1:00pm (EDT) | Blood Transfusions and Iron Overload |
 |
| Sat, 07/20/2024 - 9:45am (EDT) | Low-Risk MDS |
 |
| Sat, 07/20/2024 - 12:45pm (EDT) | Nutrition and Bone Marrow Failure |
 |
Watch Past Webinar Recordings
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia
- Presenter: David Dingli, M.D., Ph.D.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
- Presenter: Nathan Punwani, MD, MPH
In this webinar, Dr. Nathan Punwani discusses the development of secondary AML from high risk MDS, treatment options and the quality of life impact for patients.
Topic(s): Aplastic Anemia
- Presenter: Ronald Paquette, MD
In this webinar, Dr. Ronald Paquette discusses the latest advances in treating aplastic anemia. This was also recorded from a live session at the Los Angeles Patient and Family Conference in April, 2024, with questions from the live audiences online and in-person.
Topic(s): Managing Your Treatment
- Presenter: Erin Kopp, DNP
Erin Kopp explains strategies for dealing with pain and other issues for patients with bone marrow failure diseases in this session from the 2024 Los Angeles Patient and Family Conference.
Topic(s): Myelodysplastic Syndromes (MDS)
- Presenter: Brian Ball, MD
Learn about recent research and clinical advances for treating Low-Risk MDS, or Myelodysplastic Syndromes in this session from Dr. Brain Ball.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Vinod Pullarkat, MD, MRCP
Dr. Vinod Pullarkat explains how the treatments and therapies for PNH, or Paroxysmal Nocturnal Hemoglobinuria, have changed and which new therapies may be available soon.
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment
- Presenter: Finly Zachariah, MD
Finly Zachariah explains how and why treating pain issues during treatment can be beneficial to patients in this session from the 2024 Los Angeles Patient and Family Conference Session.
Topic(s): Bone Marrow Transplant, Aplastic Anemia, Myelodysplastic Syndromes (MDS)
- Presenter: Ryotaro Nakamura, MD
Dr. Ryotaro Nakamura explains the entire process for bone marrow transplantation in this recorded session from the 2024 Los Angeles Patient and Family Conference. Learn the potential ways transplants can help patients with aplastic anemia or MDS.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS)
- Presenter: Paibel Aguayo-Hiraldo, MD
Dr. Paibel Aguayo-Hiraldo, MD, anticipates your questions about inherited bone marrow failure syndromes in this recording from the 2024 Los Angeles Patient and Family Conference.
Topic(s): Bone Marrow Transplant
- Presenter: Karamjeet Singh Sandhu, MD
Dr. Karamjeet Singh explains the condition of Chronic GVHD, or Graft Versus Host Disease in this recorded session from the 2024 Los Angeles Patient and Family Conference.
Topic(s): Aplastic Anemia, Myelodysplastic Syndromes (MDS)
Patient Ruth Cuadra describes her journey facing the challenges of aplastic anemia and MDS in this recording from the 2024 Los Angeles Patient and Family Conference.
Topic(s): Myelodysplastic Syndromes (MDS)
- Presenter: Zahra Pakbaz, MD
Discover the most recent treatments and therapies available for High-Risk MDS, or Myelodysplastic Syndromes, in this recorded session featuring Dr. Zahra Pakbaz.
Cardiovascular Concerns after HCT from the 2024 Los Angeles Patient and Family Conference (Apr 2024)
Topic(s): Bone Marrow Transplant
- Presenter: June-Wha Rhee, MD
Dr. June-Wha Rhee describes the potential for cardiovascular complications after HCT, or hematopoietic stem cell transplantation, in this session from the 2024 Los Angeles Patient and Family Conference.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
In this webinar, Dr. Akriti Jain will explains the latest research presented the American Society of Hematology meeting on MDS and secondary AML. This is an advanced presentation.
Topic(s): Myelodysplastic Syndromes (MDS)
In this webinar, patients diagnosed with MDS discuss their patient journey and share their personal experiences.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
In this webinar, patients diagnosed with PNH discuss their patient journey and share their personal experiences.
Topic(s): Aplastic Anemia
In this webinar, patients diagnosed with Aplastic Anemia discuss their patient journey and share their personal experiences.
Topic(s): Pediatric Bone Marrow Failure Diseases
- Presenter: Susan Kirk, MSPAS, PA-C
In this webinar, Susan Kirk discusses the latest advances in treating pediatric aplastic anemia.
Topic(s): Bone Marrow Transplant
- Presenter: Annie Im, MD
In this webinar, Dr. Annie Im presents the latest research and treatment of GVHD.
Topic(s): Myelodysplastic Syndromes (MDS)
In this webinar, Jennie Vagher, certified genetic counselor, discusses hereditary or genetic predisposition to MDS. Jennie is an expert in rare cancer predisposition syndromes.
Patient Education Sponsors
Our Diamond Level Sponsors:
Our Gold Level Sponsors:
Our Silver Level Sponsors:
Our Bronze Level Sponsors:
Special thanks to Abbvie and Taiho Oncology