Patient and Family Webinars

In this recording, Dr. Catherine Lai discusses MDS and how patients can also be diagnosed with MPN's. Her presentation discusses the treatment options available to patients and resources. 

In this recording, Dr. Bhumika Patel discusses what is new in PNH and current treatment options available to patients. 

In this recording, Dr. Ball Brian discusses low risk MDS and current treatment options.

Debra shares both her experiences and how she maintained hope with Aplastic Anemia and its treatment.

In this recording, Dr. Phillip Scheinberg discusses aplastic anemia and current treatment options available to patients. 

In this recording, Dr. Parveen Shiraz discusses transplant for MDS and potentials complications such as GVHD and treatment options.

In this recording, Dr. Philip Scheinberg discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots. 

In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH. This is an advanced scientific presentation. At the end of the presentation, there will be a question and answer session. Questions can be submitted in advance at help@aamds.org.

In this webinar, Dr. Akriti Jain discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and AML. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be explained along with the potential impact of this research on understanding and treating MDS and AML. This is an advanced scientific presentation.

In this webinar, Dr. Alejandro Marinos Velarde discusses the risk factors that can cause post transplant relapse along with treatment and management of relapse. He answers questions from the live audience as well.

In this webinar, Dr. Tim Pearman discusses fatigue and  how it can be best managed. Jenny Finkle demonstrates some gentle exercises you can do to increase your energy level.  This was an interactive session. 

In this webinar, Dr. Jamile Shammo discusses the latest in PNH research and treatments.  

Dr. Swapna Thota describes the diagnosis, treatment, and survivorship of Aplastic Anemia in this session.  Audience questions are answered live.

In this webinar, Dr. Abhay Singh discusses the latest MDS and AML research presented at the 2024 EHA and ASCO meetings. This is an advanced educational presentation. 

In this webinar, Doris Piccinin, registered dietician, will discuss how diet can play a role in living well with a bone marrow failure disease.  You can submit questions in advance by emailing help@aamds.org.

In this webinar, Dr. Andrew Matthews discusses Low Risk MDS, current treatments and what's on the treatment horizon. Dr. Matthews took many questions from the live audience.

Pashna N. Munshi, MD, describes the strategies that bone marrow transplant teams use to prevent GVHD, or Graft VS Host Disease.  She also discusses prevalent treatments to help patients who develop this condition.

Gloria F. Gerber, MD, explains the diagnosis and treatment of PNH, or Paroxysmal Nocturnal Hemoglobinuria.  Watch this session to understand what happens to patients who develop PNH, and the options for treatment of this bone marrow failure disease.

Ellen Kalinosky describes her turbulent journey through multiple bone marrow failure diseases in this recording from the 2024 Philadelphia Patient and Family Conference.