Patient and Family Webinars | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Sat, 04/26/2025 - 10:00am (EDT) Low Risk MDS Low Risk M-D-S webinar
Sat, 04/26/2025 - 12:30pm (EDT) MDS/MPN Overlap M-D-S TO M-P-N OVERLAP webinar

Watch Past Webinar Recordings

Topic(s): Bone Marrow Transplant, Aplastic Anemia

In this webinar, Dr. Amy DeZern discusses the latest in transplantation and GVHD for aplastic anemia. The presentation will include information on clinical trials available to patients considering a transplant.  The recording includes the question and answer session.
 

Topic(s): Myelodysplastic Syndromes (MDS)

In this recording, Dr. Catherine Lai discusses MDS and how patients can also be diagnosed with MPN's. Her presentation discusses the treatment options available to patients and resources. 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this recording, Dr. Bhumika Patel discusses what is new in PNH and current treatment options available to patients. 

Topic(s): Myelodysplastic Syndromes (MDS)

In this recording, Dr. Ball Brian discusses low risk MDS and current treatment options.

Topic(s): Aplastic Anemia, Living Well with Bone Marrow Failure

Debra shares both her experiences and how she maintained hope with Aplastic Anemia and its treatment.

Topic(s): Aplastic Anemia

In this recording, Dr. Phillip Scheinberg discusses aplastic anemia and current treatment options available to patients. 

Topic(s): Myelodysplastic Syndromes (MDS)

In this recording, Dr. Parveen Shiraz discusses transplant for MDS and potentials complications such as GVHD and treatment options.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this recording, Dr. Philip Scheinberg discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots. 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH. This is an advanced scientific presentation. At the end of the presentation, there will be a question and answer session. Questions can be submitted in advance at help@aamds.org.

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

In this webinar, Dr. Akriti Jain discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and AML. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be explained along with the potential impact of this research on understanding and treating MDS and AML. This is an advanced scientific presentation.

Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Alejandro Marinos Velarde discusses the risk factors that can cause post transplant relapse along with treatment and management of relapse. He answers questions from the live audience as well.

Topic(s): Living Well with Bone Marrow Failure

In this webinar, Dr. Tim Pearman discusses fatigue and  how it can be best managed. Jenny Finkle demonstrates some gentle exercises you can do to increase your energy level.  This was an interactive session. 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this webinar, Dr. Jamile Shammo discusses the latest in PNH research and treatments.  

Topic(s): Aplastic Anemia

Dr. Swapna Thota describes the diagnosis, treatment, and survivorship of Aplastic Anemia in this session.  Audience questions are answered live.

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

In this webinar, Dr. Abhay Singh discusses the latest MDS and AML research presented at the 2024 EHA and ASCO meetings. This is an advanced educational presentation. 

Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)

In this webinar, Doris Piccinin, registered dietician, will discuss how diet can play a role in living well with a bone marrow failure disease.  You can submit questions in advance by emailing help@aamds.org.

Topic(s): Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Andrew Matthews discusses Low Risk MDS, current treatments and what's on the treatment horizon. Dr. Matthews took many questions from the live audience.

Topic(s): Bone Marrow Transplant

Pashna N. Munshi, MD, describes the strategies that bone marrow transplant teams use to prevent GVHD, or Graft VS Host Disease.  She also discusses prevalent treatments to help patients who develop this condition.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Gloria F. Gerber, MD, explains the diagnosis and treatment of PNH, or Paroxysmal Nocturnal Hemoglobinuria.  Watch this session to understand what happens to patients who develop PNH, and the options for treatment of this bone marrow failure disease.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS)

Ellen Kalinosky describes her turbulent journey through multiple bone marrow failure diseases in this recording from the 2024 Philadelphia Patient and Family Conference.

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