Patient and Family Webinars

Dr. Bart Scott explains the diagnosis bone marrow failure diseases in this session from the 2024 Patient and Family Conference in Seattle, WA.

Dr. Hetty Carraway describes the origin, diagnosis, and treatment of MDS, or Myelodysplastic Syndromes in this session.  Learn which recent treatment approvals are available as well as which may be available next.
 

Dr. Rachel Salit explains the condition, Myeloproliferative Neoplasms, along with treatment options. Her session focuses on bone marrow transplantation as a treatment for this rare disease.
 

Dr. Sioban Keel explains the diagnosis and treatment of Aplastic Anemia.  Watch now to learn about this disease.

When is a bone marrow transplant offered as a treatment for MDS?  Which patients are most eligible, and what are possible drawbacks?  Watch this session, presented by Dr. Naveed Ali, from the 2024 Seattle Patient and Family Conference to find the answers, and much more.
 

Dr. Anna Halpern describes treatment options for Myeloproliferative Neoplasms for patients who will not be treated by a bone marrow transplant. This recording is a session from the 2024 Seattle Patient and Family Conference, ready for on-demand viewing.
 

Which bone marrow failure conditions can be inherited?  What is the likelihood of inheriting aplastic anemia, PNH, or MDS?  Find out in this session that features Dr. Sioban Keel.

In this webinar, Dr. Thomas Coates will discuss blood transfusions and the potential side effect, iron overload. You may submit questions in advance by emailing help@aamds.org.

In this webinar, Dr. David Dingli presents the latest research presented the American Society of Hematology meeting on Aplastic Anemia and PNH. This is an advanced presentation. 

In this webinar, Dr. Nathan Punwani discusses the development of secondary AML from high risk MDS, treatment options and the quality of life impact for patients.
 

In this webinar, Dr. Ronald Paquette discusses the latest advances in treating aplastic anemia. This was also recorded from a live session at the Los Angeles Patient and Family Conference in April, 2024, with questions from the live audiences online and in-person.

Erin Kopp explains strategies for dealing with pain and other issues for patients with bone marrow failure diseases in this session from the 2024 Los Angeles Patient and Family Conference.

Learn about recent research and clinical advances for treating Low-Risk MDS, or Myelodysplastic Syndromes in this session from Dr. Brain Ball.  

Dr. Vinod Pullarkat explains how the treatments and therapies for PNH, or Paroxysmal Nocturnal Hemoglobinuria, have changed and which new therapies may be available soon.

Finly Zachariah explains how and why treating pain issues during treatment can be beneficial to patients in this session from the 2024 Los Angeles Patient and Family Conference Session.

Dr. Ryotaro Nakamura explains the entire process for bone marrow transplantation in this recorded session from the 2024 Los Angeles Patient and Family Conference.  Learn the potential ways transplants can help patients with aplastic anemia or MDS.   

Dr. Paibel Aguayo-Hiraldo, MD, anticipates your questions about inherited bone marrow failure syndromes in this recording from the 2024 Los Angeles Patient and Family Conference.  
 

Dr. Karamjeet Singh explains the condition of Chronic GVHD, or Graft Versus Host Disease in this recorded session from the 2024 Los Angeles Patient and Family Conference.

Patient Ruth Cuadra describes her journey facing the challenges of aplastic anemia and MDS in this recording from the 2024 Los Angeles Patient and Family Conference.