Patient and Family Webinars | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia

In this webinar, Dr. Phillip Scheinberg will discuss the latest research presented at EHA about aplastic anemia and PNH. This is an advanced presentation. There will be a Q & A session and questions can be submitted in advance to help@aamds.org.

Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)

In this webinar, Dr. Jan Bewersdorf discusses the latest research presented at EHA and ASCO on MDS and AML. This is an advanced presentation.

Topic(s): Myelodysplastic Syndromes (MDS)

In this recording, Dr. Lacey Williams discusses the diagnosis of MDS/MPN overlap and the treatment options available to patients. 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this recording, Dr. Srinivasa Sanikommu discusses complications that can occur during a PNH patient's lifetime and the treatment options available to patients. 

Topic(s): Myelodysplastic Syndromes (MDS)

Shauna describes her journey with MDS, or Myelodsplastic Syndromes, in this recorded session from the 2025 Chapel Hill Patient and Family Conference.

Topic(s): Bone Marrow Transplant

In this recording, Dr. Jeremy Meier discusses the journey of a transplant (before, during and after) and potential management of GVHD. 

Topic(s): COVID-19

In this recording, Dr. Brandi Reeves discusses the diagnosis of aplastic anemia and the treatment options available to patients.

Topic(s): Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Lacey Williams discusses the diagnosis of High Risk MDS and treatment options available to patients. 

Topic(s): Myelodysplastic Syndromes (MDS)

In this webinar, Dr. Jose Martinez discuesse the diagnosis of Low Risk MDS and treatment options available to patients. 

Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment

In this webinar, Dr. Jorg Dietrich will discusses the diagnosis of brain fog/chemo brain and how patients can manage this symptom of disease and its treatments. 

Topic(s): Bone Marrow Transplant

In this webinar, Dr. Corey Cutler discusses advances in transplant and treating GVHD, or Graft Versus Host Disease.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this webinar, Dr. Srinivasa Sanikommu discusses the management of PNH and complications experienced by patients. 

Topic(s): Myelodysplastic Syndromes (MDS)

In this recording, Dr. Jacqueline Garcia discusses the diagnosis of high risk MDS and the treatment options available to patients. 

Topic(s): Aplastic Anemia

In this recording, Dr. Nikolai Podoltsev discusses the diagnosis of aplastic anemia and the treatment options available to patients. 

Topic(s): Myelodysplastic Syndromes (MDS)

In this recording, Dr. Andrew Brunner discusses the diagnosis of low risk MDS overlap and the treatment options available to patients. 

Topic(s): Myelodysplastic Syndromes (MDS)

In this recording, Dr. Richard Stone discusses the diagnosis of MDS/MPN overlap and the treatment options available to patients. 

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

In this webinar, Dr. Srinivasa Sanikommu discusses the diagnosis of PNH and current treatments available to patients.

Topic(s): Myelodysplastic Syndromes (MDS)

In this webinar, Drs. Christin Destefano and Drew Helmar discuss the link between military toxic exposure and hematologic malignancies.

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS)

In this webinar, Kylie Chen, Registered Dietitian, discusses common nutrition challenges and evidence-based strategies to improve nutritional status and learn easy nutrition swaps.  

Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)

Bart Scott, MD, explains various treatments for PNH, or Paroxysmal Nocturnal Hemoglobinuria.  He discusses possible side effects and treatment methods.

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