Mission and History | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Mission and History

Introductory image: Group Photo at Representative Matsui's Office

Since 1983, the Aplastic Anemia and MDS International Foundation has served the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities. In pursuit of our mission to provide answers, support, and hope, we provide programs and resources that empower patients and their families, advance research that speeds the search for new treatments and potential cures, promote high-quality care by educating healthcare providers, and ensure our patients’ voices are heard through awareness and advocacy.

Some of our many programs and resources include:

Conferences, webinars, and publications that give essential information to patients and families who struggle to find accessible language about their disease and its treatments.

Support groups and peer networks that give real-life emotional support to those who are in the fight for their lives.

Competitive research grants that invest in those who pursue deeper understanding of and treatment for rare bone marrow failure diseases.

Medical and scientific education that equip health professionals with cutting-edge knowledge to provide personalized treatment to their patients, and

Advocating for research and treatment funding, giving more patients a better chance of long-term survival.

Raising awareness of bone marrow failure diseases to ensure that our patients’ voices are heard and our communities’ needs are met.