Why is it important to take control of your care?
By following simple guidelines above, you are more likely to:
- Get high-quality care. High quality care means getting the right care at the right time delivered by the right healthcare professional for you.
- Feel more in control. At times you may feel like your disease is running your life. Taking charge of your care gives you back a sense of control. When you stand up for your health, you can get the information you need to make informed choices about your medical treatment and your healthcare providers.
- Find the support you need. When take charge of your health health, you ask for help from family, friends, and others. Their support can help you cope with your disease.
Find a Specialist
It’s important for patients to seek consultation with physicians who have experience working with bone marrow failure disease. We’ve developed an interactive map of physician specialists in bone marrow failure disease who have worked with AAMDSIF in a significant way as speakers, writers, editors, and/or advisors. This map will allow you to search for physicians in your area by location using the zoom-in feature, by zip code, or by disease area utilizing the dropdowns menus. Please click here for more information.