Advice for Caregivers
Curabitur est gravida et libero vitae dictum.
treatment
"I Consider Myself Lucky:" New Mom Meghin Can Live her Life Now
Person's Name:
Meghin Kiernan
On October 24th, 2022 I received the phone call that would change my life. Enjoying a ten minute bubble bath, I initially ignored the vibrating phone along the tub's porcelain edge. My husband had recently embarked on an overseas business trip, and for the first time I was parenting as a single parent. Exhausted, my throat sore, I had just put my seven month old son to bed and wanted nothing more than to snuggle into my cozy bed and sleep. I never did get to sleep.
Bone Marrow Disease(s):
Content source:
Fundraise
Raising money for AAMDSIF through fundraising events also raises awareness for rare bone marrow failure diseases.
The Importance of Getting Second Opinion
Dr. Mikkael Sekeres describes why patients should request a second opinion about their bone marrow failure disease or blood cancer. He also shares his own perspective about asking for a second opinion, recommending that patients do select this option.
Living with PNH: Understanding the Family Medical Leave Act
What type of documentation do you need to take advantage of the Family Medical Leave Act? Attorney Chris Mills answers questions from Leigh Clark, Director of Paitent Services at AAMDSIF.
Understanding The Americans with Disabilities Act, for Patients
Learn about the Americans with Disabilities Act and how it applies to patients. Attorney Chris Mills shares his expertise in this episode.
PNH - A Patient Panel Discussion
PNH patients discuss their PNH journey by sharing their stories and answering questions from other PNH patients.
Medical Research Basics
Learn about the process to bring new therapies and treatments to patients.
Here are explanations of why and how research is developed, the different types of research involved, and how registries are used to improve the lives of patients.
"Let's Roll:" What the Heroes of 9/11 can Teach us about Facing Blood Cancer
Person's Name:
Dianne Witter
The morning of 9/11/01 was a doubly surreal experience for me. I was waiting for an appointment with my doctor at M. D. Anderson's Leukemia Center in Houston while chaos erupted in America. The waiting room was packed, as usual, with people at various stages of their own life-threatening events, and I was struck by the relative calm in this room compared to the state of disbelief and panic playing out on TVs throughout the country.
Bone Marrow Disease(s):
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