PAUL J. SHAMI, MD
Shami, Paul
Professor of Medicine in the Division of Hematology and Hematologic Malignancies at the University of Utah
Huntsman Cancer Institute
Languages Spoken: English, French, Arabic
treatment
Aplastic Anemia Non-Transplant Therapies - Patient and Family Conference in Salt Lake City, UT 2023
Prajwal Dhakal, MD
Dhakal, Prajwal
Clinical Assistant Professor of Internal Medicine
University of Iowa Health Care
Online Profile:
Evaluation of the Quality of Life and Treatment Experiences of Patients with Paroxysmal Nocturnal Hemoglobinuria
The purpose of the study is to learn what it is like to have PNH and being treated with for PNH. Individuals who participate in the study will complete an online survey about what it is like to live with PNH. The survey will take about 45 minutes. Participants may also be asked to take part in a one-hour interview by telephone or computer. The interviewer will ask questions about what it is like to have, and be treated for, PNH. No medical treatment of any kind will be given as part of this study.
Suneet Agarwal, MD, PhD
Agarwal, Suneet
Co-Program Leader for the Stem Cell Transplant Center, Dana-Farber/Boston Children's Cancer and Blood Disorders Center & Associate Professor of Pediatrics, Harvard Medical School
Boston's Children's Hospital
Online Profile:
2023 AAMDSIF Patient and Family Conference in Dallas, TX
Join patients, families and caregivers for the 2023 Dallas, TX Patient and Family Conference This event is chaired and organized by Dr. Taha Bat from UT Southwestern.
Event Date:
Sat, 11/04/2023 - 9:30am (EDT)
Bone Marrow Disease(s):
Conference Event Type:
Survivorship: Life after Diagnosis - 2023 Omaha Patient and Family Hybrid Conference
Transplants for MDS and Severe Aplastic Anemia - 2023 Omaha Patient and Family Hybrid Conference
Managing PNH and Complications from the Omaha Patient & Family Hybrid Conference 2023
PNH Non-Transplant Therapies and Management -2023 Omaha Patient -Family Hybrid Conference
From the 2023 Omaha Patient and Family Hybrid Conference: PNH Non-Transplant Therapies with Dr. Alex Nester. Learn symptom management and options for therapies in this session which includes questions from the audience.