Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

Square photo of two women with a tablet device.

Quick Links: Resources for You

Photo of family.
The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Registration for 2025 Patient and Family Conferences will open soon. Until then, please find recorded sessions from the 2024 conferences here.

March for Marrow and Community Fundraisers»

Raising money for AAMDSIF through fundraising events also raises awareness for rare bone marrow failure diseases. Your participation by recruiting friends, family, and coworkers spreads the word and helps fund the mission of AAMDSIF.

Stories of Hope»

Mark

Mark had no symptoms common to bone marrow failure patients. Not one. But an MRI for back pain revealed some unusual markers.  A bone...

Professional Conferences»

March 20, 2026

The 10th International Bone Marrow Failure Disease Scientific Symposium will bring together physicians treating these diseases; laboratory...

Online Library

Webinars »

November 14, 2025

In this webinar, Dr. Phillip Scheinberg will discuss the latest research presented at EHA about aplastic anemia and PNH. This is an...

Podcast Episodes »

AAMDSIF Podcast for Patients

Pediatric nurse to medical student to patient? This was Claire's life. Listen to her story here.

Conference Materials »

Saturday, September 27, 2025 - 7:30am

Session Recordings Available:  MDS to MPN Overlap from the 2025 Boston Patient and Family Conference High Risk MDS from the 2025 Boston...

Research Articles »

Originally published: September 15, 2025

Severe aplastic anemia (SAA) is treated with a hematopoietic cell transplant (HCT) in the presence of an HLA-matched sibling donor (MSD) with disease...

Graphic - Your Support Drives Progress (with donation button).

Your Support Helps Patients Like Phoenix

“Phoenix's rare condition made us feel incredibly isolated. AAMDSIF offers many support groups, including one for parents of children with aplastic anemia. The group has been immensely comforting, allowing us to share experiences and find strength together. You can help AAMDSIF give answers, support, and hope to others weathering this storm. Please make a donation to the Aplastic Anemia and MDS International Foundation this holiday season.”

Help Patients Now »