Mission Statement
The Aplastic Anemia Aplastic Anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most… & MDS International Foundation empowers individuals diagnosed with aplastic anemia, myelodysplastic syndromes myelodysplastic syndromes: (my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development. People with MDS have low blood cell count for at… (MDS), paroxysmal nocturnal hemoglobinuria paroxysmal nocturnal hemoglobinuria: (par-uk-SIZ-muhl nok-TURN-uhl hee-muh-gloe-buh-NYOOR-ee-uh) A rare and serious blood disease that causes red blood cells to break apart. Paroxysmal means sudden and irregular. Nocturnal means at night. Hemoglobinuria means hemoglobin in the urine. Hemoglobin is the red part of red blood cells. A… (PNH) and their support network by providing timely information, a community of support, improved treatment through health provider education, and hope for a cure through promotion of research.
Vision Statement
Patients, caregivers, and healthcare providers around the world have access to the resources they need so that everyone diagnosed with Aplastic Anemia, MDS, and PNH can thrive.
Values Statement
In carrying out its mission, the Aplastic Anemia & MDS International Foundation and its Board members, staff and volunteers shall endeavor to act with the following values:
- Commitment to serving the needs of Aplastic Anemia, myelodysplastic syndrome (MDS), and paroxysmal nocturnal hemoglobinuria (PNH) patients and their network of support
- Respect for the worth and dignity of all individuals
- Dedication to inclusiveness and diversity
- Commitment to transparency, integrity and honesty in all dealings
- Responsible stewardship of resources