A Teenager with MDS? His Mom Explains
Terri shares the journey of Thomas' surprise diagnosis, rigorous treatment, and wonderful survivorship in this conversation.
Podcast Episodes
Our patients, families, and caregivers have been asking us for more ways to learn about rare blood cancers and bone marrow failure diseases. So, we're coming to you today, thanks to generous support from individual donors and our corporate partners.
Leigh Ann and her son are both successful transplant patients after MDS!
10 years after diagnosis, Leigh Ann needed a bone marrow transplant. Five years later, her son did, too! Listen to her story of different family members having the same rare disease, Myelodysplastic Syndromes, here.
What Happens in a Clinical Trial? How do I know if it's the right option for me?
Why would I choose a clinical trial? What kind of additional care would I receive? How do I know if I qualify?
Christina Cline, RN, BSN, CCRC, explains both patient and nurse navigator roles in this recent recording.
Surprised by diagnosis, Mark learns to live with low-risk Myelodysplastic Syndrome
Mark had no symptoms prior to diagnosis. Even more surprising was the "watch and wait" treatment plan! Listen to this recently recorded episode where Mark describes living as an MDS survivor now.
Brian finds his way through low-risk, long-term MDS
Brian's surprise MDS diagnosis leads to an unsettling strategy: watch and wait! Listen to him describe how he makes the most from the long-term waiting with low-risk MDS in this conversation with AAMDSIF.
Using Integrative Medicine to help patients through Treatment- a recent conversation with Dr. M. Kogan
Dr. Mikhail Kogan, Medical Director of the GW Center for Integrative Medicine, discusses incorporating Integrative Medicine into a patient's treatment plan. He describes using yoga, meditation, and other techniques to help patients while they are in treatment for bone marrow failure conditions.
New marrow: SCT, BMT, and GvHD with Dr. Corey Cutler, Medical Director, Stem Cell Transplantation Program at Dana Farber Cancer Institute
Learn all about the risks, benefits, and side effects of the transplantation process.
A Clinical Trial Saves her Life! with Theresa Elgin
Persistence, Advocacy, and a Clinical Trial: Theresa is now a Survivor!
Sarah was ready for a great career, but the diagnosis changed her plans... temporarily!
Imagine being ready to launch your career, then being thrown off course by both aplastic anemia and PNH, all at once! Listen to Sarah's story of her path to survivorship here.
Kat Edmonds knows patients, but more importantly, she coaches them on how to make the best decisions for their own lives. Find out more here:
Kat hears patients ask: "I have this bone marrow failure problem ... how is this going to affect me and loved ones? What does this mean for my life?" Discover how Kat helps walk patients through diagnosis, treatment, and survivorship.
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