A Clinical Trial Saves her Life! with Theresa Elgin
Persistence, Advocacy, and a Clinical Trial: Theresa is now a Survivor!
Podcast Episodes
Our patients, families, and caregivers have been asking us for more ways to learn about rare blood cancers and bone marrow failure diseases. So, we're coming to you today, thanks to generous support from individual donors and our corporate partners.
Sarah was ready for a great career, but the diagnosis changed her plans... temporarily!
Imagine being ready to launch your career, then being thrown off course by both aplastic anemia and PNH, all at once! Listen to Sarah's story of her path to survivorship here.
Kat Edmonds knows patients, but more importantly, she coaches them on how to make the best decisions for their own lives. Find out more here:
Kat hears patients ask: "I have this bone marrow failure problem ... how is this going to affect me and loved ones? What does this mean for my life?" Discover how Kat helps walk patients through diagnosis, treatment, and survivorship.
Busy, happy retirement shaken by MDS - AML: Shirley's story of survivorship!
From a sunny, lively retirement to MDS then AML? That was Shirley's life! After treatment in a Clinical Trial, she is in remission, still playing the accordion! This is her story.
Is sleep that important for bone marrow disease patients? Discover Dr. Mekonnen's insights here:
Can sleep affect your treatment for bone marrow failure diseases? Dr. Asefa Mekonnen explains why sleep is important for patients as well as when to tell your doctor that you aren't sleeping well. Check this out!
"What do I do now?" Nancy Corbitt, Nurse Navigator shares her wisdom
Nancy has worked with hundreds of patients in her career, guiding patients through decision-making and treatment. Discover her best advice for bone marrow failure patients and caregivers in this podcast.
Patrice led the charge in her treatment for aplastic anemia
Patrice banned "stinkin' thinkin'" from her mind as she began treatment for aplastic anemia. Later, she'd continue that practice during her bone marrow transplant, so she began not just surviving, but thriving! Listen to her story here.
Duane's Normal, Active Life: Disrupted by MDS, Transfusions, Treatments
Listen to Duane's story, leading to his 2009 transplant, and continuing survivorship!
From Diagnosis to Transplant to Survivorship
"Three hours after they drew my blood, my doctor called to tell me to go immediately to the emergency room!" Because Kirollos was a pharmacy student, he understood that having such low blood counts needed fast treatment, but he was still surprised. Discover how he progressed from diagnosis to transplant to survivorship quickly here.
"Never give up!" Inspiration from patient, to patient
"Never give up!" That's Brandi's advice to patients. Her diagnosis was months in coming, and then more time to find the best allogenic donor for her transplant---over 19 months in the hospital between diagnosis and successful transplant.
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