treatment
Growth Factors
Growth factors are naturally occurring hormones in your body that signal your bone marrow to make more of certain types of blood cells. Man-made growth factors may be given to some people with
Chemotherapy
Blood Transfusions
A blood transfusion is a safe and common procedure. Most people who have a
Blood Clot Treatment
Blood clots are very dangerous. If you have a blood clot, you need to get help right away. Patients with PNH are at an increased risk of getting serious blood clots.
Androgens
Androgens are natural male hormones that can cause your bone marrow to make more red blood cells. This can improve anemia.
2024 Philiadelphia, PA, Patient and Family Conference
The conference was held over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET.
Watch these recordings from conference sessions:
2023 New Haven Patient and Family Conference
On October 14, 2023, Patient and Family Hybrid Conference, in Partnership with Yale Cancer Center, was held in New Haven, CT. Find recordings or materials from this conference here.
Session Recordings:
High-Risk MDS from the 2023 Patient and Family Conference in New Haven, CT
2nd Annual DEI Symposium for Bone Marrow Failure Care
This symposium provides updates on the most recent advances in the pathophysiology, diagnosis and clinical management of