2026 Seattle Patient and Family Conference
Patients with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood c
Paroxysmal Nocturnal Hemoglobinuria (PNH)
2026 Tampa Patient and Family Conference
Patients with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood c
Real-world clinical outcomes and treatment response in complement inhibitor experienced and naïve PNH patients prescribed pegcetacoplan in Europe and Canada
Objectives: This study investigated outcomes and response to pegcetacoplan pegcetacoplan:
The varieties of therapeutic experience: navigating treatment options for patients with PNH
Paroxysmal nocturnal hemoglobinuria Paroxysmal nocturnal hemoglobinuria:
PNH Virtual Support Group - 2026 March
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with PNH. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants.
Aplastic Anemia, MDS, PNH Virtual Support Group-Saturdays-2026 April
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious co
Managing Quality of Life Considerations for Patients with Bone Marrow Failure
Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Erin Kopp, DNP
This 30-minute webinar reviews the range of opportunities for health care providers to incorporate quality of life considerations with bone marrow failure patients and their caregivers. Assessing resources needed for patients and communicating with the entire health care team…
Coordinating Care for Patients With Bone Marrow Failure
Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Beena Mathew, MSN, OCN, RN
This informative 30-minute webinar provides practical recommendations for how health care providers can coordinate care for their bone marrow failure patients. Communication among members of the entire health care team managing these patients will also be discussed. This webinar…
AAMDSIF Resources for Health Professionals
Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Bhumika Patel, MD
Dr. Patel discusses how health care providers, especially those in community settings, can connect patients with aplastic anemia, MDS, or PNH with AAMDSIF patient education resources and support. View, download, or order AAMDSIF patient guides and fact sheets here: https://www…