In this webinar, Dr. Tim Pearman discusses fatigue and how it can be best managed. Jenny Finkle demonstrates some gentle exercises you can do to increase your energy level. This was an interactive session.
Patient and Family Webinars
Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!
Register for Upcoming Patient Webinars
| Thu, 09/26/2024 - 4:00pm (EDT) | Post-Transplant Relapse - MDS |
 |
Watch Past Webinar Recordings
Topic(s): Living Well with Bone Marrow Failure
- Presenter: Timothy Pearman, PhD
- Presenter: Jenny Finkel
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
- Presenter: Jamile M. Shammo, MD, FASCP, FACP
In this webinar, Dr. Jamile Shammo discusses the latest in PNH research and treatments.
Topic(s): Aplastic Anemia
- Presenter: Swapna Thota, MD
Dr. Swapna Thota describes the diagnosis, treatment, and survivorship of Aplastic Anemia in this session. Audience questions are answered live.
Topic(s): Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
- Presenter: Abhay Singh, MD, MPH
In this webinar, Dr. Abhay Singh discusses the latest MDS and AML research presented at the 2024 EHA and ASCO meetings. This is an advanced educational presentation.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Bone Marrow Transplant, Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS), Managing Your Treatment, Acute Myeloid Leukemia (AML)
In this webinar, Doris Piccinin, registered dietician, will discuss how diet can play a role in living well with a bone marrow failure disease. You can submit questions in advance by emailing help@aamds.org.
Topic(s): Myelodysplastic Syndromes (MDS)
In this webinar, Dr. Andrew Matthews discusses Low Risk MDS, current treatments and what's on the treatment horizon. Dr. Matthews took many questions from the live audience.
Topic(s): Bone Marrow Transplant
Pashna N. Munshi, MD, describes the strategies that bone marrow transplant teams use to prevent GVHD, or Graft VS Host Disease. She also discusses prevalent treatments to help patients who develop this condition.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH)
Gloria F. Gerber, MD, explains the diagnosis and treatment of PNH, or Paroxysmal Nocturnal Hemoglobinuria. Watch this session to understand what happens to patients who develop PNH, and the options for treatment of this bone marrow failure disease.
Topic(s): Aplastic Anemia
- Presenter: Daria Babushok, MD, PhD
Dr. Daria Babushok explains the medical condition of Aplastic Anemia. She describes symptoms and treatments as well as recent research.
Topic(s): Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Living Well with Bone Marrow Failure, Myelodysplastic Syndromes (MDS)
Ellen Kalinosky describes her turbulent journey through multiple bone marrow failure diseases in this recording from the 2024 Philadelphia Patient and Family Conference.
Topic(s): Myelodysplastic Syndromes (MDS)
Keith W Pratz, MD, explains High-Risk MDS, or Myelodysplastic Syndromes, in this recorded conference session. He details risk categories as well as treatments, plus anticipated research on the disease.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies
- Presenter: Anna Halpern, MD
Dr. Anna Halpern describes treatment options for Myeloproliferative Neoplasms for patients who will not be treated by a bone marrow transplant. This recording is a session from the 2024 Seattle Patient and Family Conference, ready for on-demand viewing.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
- Presenter: Bart Scott, MD
Dr. Bart Scott explains the diagnosis bone marrow failure diseases in this session from the 2024 Patient and Family Conference in Seattle, WA.
Topic(s): Myelodysplastic Syndromes (MDS)
- Presenter: Hetty Carraway, M.D.
Dr. Hetty Carraway describes the origin, diagnosis, and treatment of MDS, or Myelodysplastic Syndromes in this session. Learn which recent treatment approvals are available as well as which may be available next.
Topic(s): Aplastic Anemia
- Presenter: Sioban Keel, MD
Dr. Sioban Keel explains the diagnosis and treatment of Aplastic Anemia. Watch now to learn about this disease.
Topic(s): Bone Marrow Transplant, Myelodysplastic Syndromes (MDS)
- Presenter: Naveed Ali, MD
When is a bone marrow transplant offered as a treatment for MDS? Which patients are most eligible, and what are possible drawbacks? Watch this session, presented by Dr. Naveed Ali, from the 2024 Seattle Patient and Family Conference to find the answers, and much more.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Pediatric Bone Marrow Failure Diseases, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS)
- Presenter: Sioban Keel, MD
Which bone marrow failure conditions can be inherited? What is the likelihood of inheriting aplastic anemia, PNH, or MDS? Find out in this session that features Dr. Sioban Keel.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies
- Presenter: Rachel B. Salit, MD
Dr. Rachel Salit explains the condition, Myeloproliferative Neoplasms, along with treatment options. Her session focuses on bone marrow transplantation as a treatment for this rare disease.
Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Paroxysmal Nocturnal Hemoglobinuria (PNH), Aplastic Anemia, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
- Presenter: Anna Halpern, MD
Dr. Anna Halpern explains how bone marrow failure diseases can advance into certain leukemias in this session from the 2024 Seattle Patient and Family Conference.
Topic(s): Living Well with Bone Marrow Failure, Managing Your Treatment
In this webinar, Dr. Thomas Coates will discuss blood transfusions and the potential side effect, iron overload. You may submit questions in advance by emailing help@aamds.org.
Patient Education Sponsors
Our Diamond Level Sponsors:
Our Gold Level Sponsors:
Our Silver Level Sponsors:
Our Bronze Level Sponsors:
Special thanks to Abbvie and Taiho Oncology