Patient and Family Webinars

In this webinar, Dr. Akriti Jain discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and AML. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be explained along with the potential impact of this research on understanding and treating MDS and AML. This is an advanced scientific presentation.

In this webinar, Dr. Alejandro Marinos Velarde discusses the risk factors that can cause post transplant relapse along with treatment and management of relapse. He answers questions from the live audience as well.

In this webinar, Dr. Tim Pearman discusses fatigue and  how it can be best managed. Jenny Finkle demonstrates some gentle exercises you can do to increase your energy level.  This was an interactive session. 

In this webinar, Dr. Jamile Shammo discusses the latest in PNH research and treatments.  

Dr. Swapna Thota describes the diagnosis, treatment, and survivorship of Aplastic Anemia in this session.  Audience questions are answered live.

In this webinar, Dr. Abhay Singh discusses the latest MDS and AML research presented at the 2024 EHA and ASCO meetings. This is an advanced educational presentation. 

In this webinar, Doris Piccinin, registered dietician, will discuss how diet can play a role in living well with a bone marrow failure disease.  You can submit questions in advance by emailing help@aamds.org.

In this webinar, Dr. Andrew Matthews discusses Low Risk MDS, current treatments and what's on the treatment horizon. Dr. Matthews took many questions from the live audience.

Pashna N. Munshi, MD, describes the strategies that bone marrow transplant teams use to prevent GVHD, or Graft VS Host Disease.  She also discusses prevalent treatments to help patients who develop this condition.

Gloria F. Gerber, MD, explains the diagnosis and treatment of PNH, or Paroxysmal Nocturnal Hemoglobinuria.  Watch this session to understand what happens to patients who develop PNH, and the options for treatment of this bone marrow failure disease.

Keith W Pratz, MD, explains High-Risk MDS, or Myelodysplastic Syndromes, in this recorded conference session. He details risk categories as well as treatments, plus anticipated research on the disease.

Dr. Daria Babushok explains the medical condition of Aplastic Anemia. She describes symptoms and treatments as well as recent research.

Ellen Kalinosky describes her turbulent journey through multiple bone marrow failure diseases in this recording from the 2024 Philadelphia Patient and Family Conference.

Dr. Anna Halpern explains how bone marrow failure diseases can advance into certain leukemias in this session from the 2024 Seattle Patient and Family Conference.

Dr. Anna Halpern describes treatment options for Myeloproliferative Neoplasms for patients who will not be treated by a bone marrow transplant. This recording is a session from the 2024 Seattle Patient and Family Conference, ready for on-demand viewing.
 

Dr. Bart Scott explains the diagnosis bone marrow failure diseases in this session from the 2024 Patient and Family Conference in Seattle, WA.

Dr. Hetty Carraway describes the origin, diagnosis, and treatment of MDS, or Myelodysplastic Syndromes in this session.  Learn which recent treatment approvals are available as well as which may be available next.
 

Dr. Sioban Keel explains the diagnosis and treatment of Aplastic Anemia.  Watch now to learn about this disease.

When is a bone marrow transplant offered as a treatment for MDS?  Which patients are most eligible, and what are possible drawbacks?  Watch this session, presented by Dr. Naveed Ali, from the 2024 Seattle Patient and Family Conference to find the answers, and much more.