Thanks to the efforts of our AAMDSIF bone marrow failure bone marrow failure: A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be… community and coalition partners, a bipartisan group of 105 U.S. House and 29 Senate members urged their leaders to restore funding to the Congressionally Directed Medical Research Programs (CDMRP) including the Bone Marrow Failure Research Program (BMFRP).
In March, Congress cut funding to the CDMRP by 57% and cut ALL funding to CDMRP’s Bone Marrow Failure Research Program. This means new lifesaving and cutting-edge research through the BMFRP that could lead to treatments for Aplastic Anemia Aplastic Anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most… , MDS, PNH, and related bone marrow failure diseases has stopped. This disruption has the potential to negatively impact bone marrow failure research for years to come unless funding is restored and increased.
Due to the bone marrow failure community’s patient, families, and health professionals’ voices and AAMDSIF’s coalition work with the Defense Health Research Consortium (DHRC) the three letters below were sent by a bipartisan group of Representatives and Senators to Congressional leaders.
Please keep calling, writing, and emailing your Members of Congress to restore this essential research funding. You will be able to find the record of our efforts on these Advocacy in Action pages and through email (subscribe here.)