AMDSIF is collecting stories so that we can be a voice for the Bone Marrow Failure Bone Marrow Failure: A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be… community. Your experience is important!
Would you share your story, please?
Your story in your own words is the most powerful message anyone can send to address this legislative issue. When lawmakers read or hear authentic stories from real patients and families in their district, they learn and believe your concern is real.
Please share your story with AAMDSIF by using the form below, or email stories@aamds.org to connect with staff who can help tell your story. For questions, please email stories@aamds.org. Thank you for your help!