AAMDSIF Advocacy in Action

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AAMDSIF is committed to advancing the Bone Marrow Failure Community’s interests with members of Congress, regulatory agencies, and other policy makers by increasing awareness of our diseases, providing opportunities for engagement, and elevating our patients’ stories. The Advocacy Actions on this page highlight the Foundation's efforts to ensure that your voices are being heard by those who can advance our cause.

Status Update Support is Growing to Restore Funding to CDMRP and BMFRP Research Programs

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Status Update
Thanks to the efforts of our AAMDSIF bone marrow failure community and coalition partners, a bipartisan group of 105 U.S. House and 29 Senate members urged their leaders to restore funding to the Congressionally Directed Medical Research Programs ( CDMRP) including the Bone…

AAMDSIF Calls for Restoration of Bone Marrow Failure Research Funding

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Coalition Action
The Aplastic Anemia and MDS International Foundation joined 156 other members of the Defense Health Research Consortium (DHRC) in calling for Congress to restore funding in Fiscal Year 2025 for the Congressionally Directed Medical Research Program (CDMRP) which includes the Bone…

AAMDSIF Supports the Accelerating Kids' Access to Care Act

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Coalition Action
AAMDSIF Supports the Accelerating Kids' Access to Care Act. On March 26, 2025, AAMDSIF joined with 212 additional patient advocacy and medical center organizations in urging members of the US Congress to pass the Accelerating Kids’ Access to Care Act. Passage of this bill will…

Oppose 57% Cut to Congressionally Directed Medical Research Programs

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Community Impact
Oppose 57% Cut to Congressionally Directed Medical Research Programs Take Action Before House Vote Oppose 57% Cut to Congressionally Directed Medical Research Programs Tell your Members of Congress to Vote NO on The Full-Year Continuing Appropriations and Extensions Act, 2025 As…

Letter on the Bipartisan Senate FY25 Labor-HHS-Education Appropriations Bill

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Coalition Action
AAMDSIF is Taking a Stand for NIH Research Research programs led by the National Institutes of Health (NIH) forge the way for life-saving new treatments for rare diseases such as aplastic anemia, MDS, and PNH. With clinical research locations throughout the U.S., researchers and…

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