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Mission and History
Since 1983, the Aplastic Anemia and MDS International Foundation has served the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities. In pursuit of our mission to provide answers, support, and hope, we provide programs and resources that empower patients and their families, advance research that speeds the search for new treatments and potential cures, promote high-quality care by educating healthcare providers, and ensure our patients’ voices are heard through awareness and advocacy.
Corporate Partners
AAMDSIF receives support from corporate partners who invest in advancing our mission. Thanks to their financial contributions, we are able to provide answers, support, and hope to patients, their families, and healthcare professionals entrusted with providing quality care.
Participate in Research
Patients can make a difference in the development of future treatments and the improvement of outcomes by participating in research. Check out the sections here to discover if any of these options are suitable for you.
Understanding Clinical Trials
Clinical research is at the heart of all medical advances, identifying new ways to prevent, detect or treat disease. If you have a bone marrow failure disease, you may want to consider taking part in a clinical trial, also called a research study.
"I Consider Myself Lucky:" New Mom Meghin Can Live her Life Now
Person's Name:
Meghin Kiernan
On October 24th, 2022 I received the phone call that would change my life. Enjoying a ten minute bubble bath, I initially ignored the vibrating phone along the tub's porcelain edge. My husband had recently embarked on an overseas business trip, and for the first time I was parenting as a single parent. Exhausted, my throat sore, I had just put my seven month old son to bed and wanted nothing more than to snuggle into my cozy bed and sleep. I never did get to sleep.
Bone Marrow Disease(s):
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Fundraise
Raising money for AAMDSIF through fundraising events also raises awareness for rare bone marrow failure diseases.
The Importance of Getting Second Opinion
Dr. Mikkael Sekeres describes why patients should request a second opinion about their bone marrow failure disease or blood cancer. He also shares his own perspective about asking for a second opinion, recommending that patients do select this option.
Living with PNH: Understanding the Family Medical Leave Act
What type of documentation do you need to take advantage of the Family Medical Leave Act? Attorney Chris Mills answers questions from Leigh Clark, Director of Paitent Services at AAMDSIF.
Understanding The Americans with Disabilities Act, for Patients
Learn about the Americans with Disabilities Act and how it applies to patients. Attorney Chris Mills shares his expertise in this episode.