patient

Transplant for Aplastic Anemia from the Patient and Family Conference in Salt Lake City, UT, 2023

Michael Pulsipher, MD, Primary Children's Hospital, explains the details of bone marrow transplant for

PNH and Non-Transplant Therapies from the Patient and Family Conference in Salt Lake City, UT 2023

Charles Parker, MD, AB from Huntsman Cancer Institute explains various treatments for patients with PNH, or

MDS and Non-Transplant Therapies from the Patient and Family Conference in Salt Lake City, UT, 2023

Paul J Shami, MD of Huntsman Cancer Institute describes the types of therapies that may be used in treating MDS, or

PAUL J. SHAMI, MD

Shami, Paul

Professor of Medicine in the Division of Hematology and Hematologic Malignancies at the University of Utah

Huntsman Cancer Institute

Languages Spoken: English, French, Arabic

Online Profile:

Professor of Medicine in the Division of Hematology and Hematologic Malignancies

Aplastic Anemia Non-Transplant Therapies - Patient and Family Conference in Salt Lake City, UT 2023

Srinivas Tantravahi, MBBS, MRCP (UK) of Huntsman Cancer Institute explains which non-transplant therapies may be considered for treatment of

Predisposition to Inherited Bone Marrow Failure Syndromes from Patient & Family Conference UT 2023

Suneet Agarwal, MD, PhD from Boston's Children's Hospital provides essential information for families about inherited

Prajwal Dhakal, MD

Dhakal, Prajwal

Clinical Assistant Professor of Internal Medicine

University of Iowa Health Care

Online Profile:

https://uihc.org/providers/prajwal-dhakal

Evaluation of the Quality of Life and Treatment Experiences of Patients with Paroxysmal Nocturnal Hemoglobinuria

The purpose of the study is to learn what it is like to have PNH and being treated with for PNH. Individuals who participate in the study will complete an online survey about what it is like to live with PNH. The survey will take about 45 minutes. Participants may also be asked to take part in a one-hour interview by telephone or computer. The interviewer will ask questions about what it is like to have, and be treated for, PNH. No medical treatment of any kind will be given as part of this study.

Suneet Agarwal, MD, PhD

Agarwal, Suneet

Co-Program Leader for the Stem Cell Transplant Center, Dana-Farber/Boston Children's Cancer and Blood Disorders Center & Associate Professor of Pediatrics, Harvard Medical School

Boston's Children's Hospital

Online Profile:

https://www.childrenshospital.org/directory/suneet-agarwal

2023 AAMDSIF Patient and Family Conference in Dallas, TX

Join patients, families and caregivers for the 2023 Dallas, TX Patient and Family Conference This event is chaired and organized by Dr. Taha Bat from UT Southwestern.

Event Date:

Sat, 11/04/2023 - 9:30am (EDT)

2023 Patient and Family Conference - Dallas, Texas »

Bone Marrow Disease(s):

Conference Event Type:

Patient and Family - Regional One Day