PNH - A Patient Panel Discussion
PNH patients discuss their PNH journey by sharing their stories and answering questions from other PNH patients.
patient
Ways to Give
Your financial donation is the best way to ensure patients get the support they need. There are several creative ways you can give.
Medical Research Basics
Learn about the process to bring new therapies and treatments to patients.
Here are explanations of why and how research is developed, the different types of research involved, and how registries are used to improve the lives of patients.
"Let's Roll:" What the Heroes of 9/11 can Teach us about Facing Blood Cancer
Person's Name:
Dianne Witter
The morning of 9/11/01 was a doubly surreal experience for me. I was waiting for an appointment with my doctor at M. D. Anderson's Leukemia Center in Houston while chaos erupted in America. The waiting room was packed, as usual, with people at various stages of their own life-threatening events, and I was struck by the relative calm in this room compared to the state of disbelief and panic playing out on TVs throughout the country.
Bone Marrow Disease(s):
Content source:
What is PNH?
Caroline Piatek, MD
Piatek, Caroline
Clinical Associate Professor of Medicine (Clinician Educator) Hematology Fellowship Program Director LAC+USC Service Chief for Hematology
Keck Hospital of USC
Dr. Caroline Piatek is an Associate Professor in the Jane Anne Nohl Division of Hematology at the Keck School of Medicine of USC. She is currently the fellowship director for the USC/LAC+USC Medical Hematology Fellowship Program. Dr. Piatek’s clinical focus is in non-malignant hematology. Her research interests include immune
2023 Salt Lake City Patient and Family Conference
Thank you for attending the 2023 Salt Lake City Patient and Family Conference. We will keep uploading presentations as we receive them, please keep checking back for updates.
Presentation Materials:
Event Date:
Sat, 07/15/2023 - 8:00am (EDT)
Conference Materials:
Bone Marrow Disease(s):
Conference Event Type:
Patient Panel: Addressing Patient Challenges and Barriers - Patient & Family Conference Utah 2023
Watch this informative patient panel from the 2023 Patient and Family Conference in Salt Lake City, Utah. This session was led by Jill Gahlsford, RN, of Huntsman Cancer Institute.
Living with GVHD, or Graft Versus Host Disease, from the Patient and Family Conference Utah 2023
Sagar Patel, MD, Huntsman Cancer Institute, explains this post-transplant condition and its treatments. Watch to learn more about techniques used to prevent GVHD as well as short-term and long-term complications.
Transplant for MDS, or Myelodysplastic Syndromes, from the Patient and Family Conference, Utah, 2023
Ryotaro Nakamura, MD, City Of Hope, explains the reasons why the specialist may recommend a bone marrow transplant for a patient with MDS. The recording includes questions from the audience.