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Kyle Malmstrom – Saved by Identical Twin, Young Aplastic Anemia Survivor Literally Brings Comfort to Others

Person's Name: 
Kyle Malmstron

Written by Kimberly Malmstrom

Our son, Kyle, was a normal active 11-year-old who enjoyed climbing trees, swimming, and running. He loved to run around and play with his friends.  The first week of school last fall was normal for Kyle.  He was excited to see friends and meet his new sixth grade teachers. However, throughout that week, he developed large bruises. Some had known causes - others did not.  

Bone Marrow Disease(s): 
Content source: 
web exclusive

Patient Advisory Council

The AAMDSIF Patient Advisory Council (PAC) was created in 2008. Its purpose is to serve as a resource to the AAMDSIF staff in the development and review of patient education materials, programs and services. Members of the PAC include doctors, nurses, patient educators, patients and caregivers, all of whom have an interest in supporting the needs of people living with aplastic anemia, MDS, PNH or another bone marrow failure disease. Review by the PAC provides patients and their families with the full confidence that they are receiving the most accurate, reliable and up-to-date information from the Foundation.

Builds supportive community to help him with MDS and bone marrow transplant

Person's Name: 
Duane Draper

When Duane Draper was diagnosed with MDS in July, 2009, the 57-year-old father of two grown children was asymptomatic and didn’t even realize that there was a problem with his health. Though he had been feeling slightly more fatigued, he attributed it to aging and didn’t worry about it. However, during a  physical, his physician did some routine blood work and discovered that all three of his blood counts were low.

Content source: 
eBulletin / eInsider (story of hope)

How do I get my medical records from a doctor?

If you want a copy of your medical records, you  must submit a written request to the hospital or the doctor's office. The law requires that patients provide doctors with written authorization to disclose medical records or the information contained in them. Some hospitals have their own form that needs to be completed. Patients may receive copies of their medical records, however the originals must remain in the physician's or hospital's file.  Please consult with your physician's office for access to digital records.