patient
Types of Blood Transfusions
A Remarkable Response in a Clinical Trial
Person's Name:
Shirley O’Brien
In February 2012, I was diagnosed with myelodysplastic syndrome (MDS), a disease that has no cure except for a stem cell transplant. Because I was in my mid-70s, a bone marrow transplant wasn’t the best option.
Bone Marrow Disease(s):
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Annie Tighe – A Second Transplant Saves Annie
Person's Name:
Annie Tighe
This is the story of my beautiful granddaughter Annie, who celebrated her 13th birthday this April 2014. It’s also the story of Annie’s big sister Katherine, as well as of her mother Melissa, and her father, Tom (my son).
When my husband and I picked Annie up from pre-school in December of 2005, we noticed bruises on her arms and legs. Melissa looked over her body closely that evening and counted 14 bruises! She immediately took Annie to her pediatrician, who took one look at her and said, “Take her to The City of Hope.”
Bone Marrow Disease(s):
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Bone Marrow and Stem Cell Transplantation
Amer Zeidan, MBBS
Zeidan, Amer
Assistant Professor Of Medicine (hematology)
Yale University and Yale Cancer Center
Online Profile:
Patient, Educator, and Volunteer
Person's Name:
Stephen King
A PNH survivor for more than 25 years, Stephen King speaks about his life as a patient and an advocate in both formal and informal roles -- and offers advice for newly diagnosed PNH patients.
“I’m an engineer with a problem-solving orientation,” says the medical software manager from Atlanta, Georgia. “After my diagnosis, I thought, now that you know what it is, let’s fix it. It took a little time to sink in that there was no quick fix, and I had to learn more about it.”
Early Diagnosis, Treatment and Emphasis on Self-Advocacy
Bone Marrow Disease(s):
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Jamie Lam - PNH Patient Jamie Lam Resumes Favorite Sport
Person's Name:
Jamie Lam
I realized something wasn’t right when I was out of breath from simply walking up a hill to get to class during my senior year in college. I had been an active fencer since high school, and it didn’t make sense that walking up a hill would give me so much trouble. I visited my doctor after graduation, and I was put in the hospital the next day. My nurse came in and told me, “We are paging the doctor who does
Bone Marrow Disease(s):
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A Rare Case of Aplastic Anemia Later in Life Won't Stop Me
Person's Name:
Al Meyer
I grew up in Louisiana - born in New Orleans and raised in Lafayette. I joined the Army, and went to Seattle and worked at Madigan General Hospital where I met my wife. I was then sent to Vietnam. After I returned, I worked for a bank in Seattle for 16 years, becoming a vice president and manager. I helped finance an auto auction as part of this job, and as a result, I fell in love with the car businesses. I was accepted for a Ford training program that lasted for two years at a Seattle Ford dealership.
Bone Marrow Disease(s):
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Thankful to Be Here and Alive
Person's Name:
Kendra Arvon
I was a very active 17-year-old when I got the news. It was October of 2005, the beginning of high school basketball season in my hometown of Beckley, West Virginia, when I became ill. I thought it was a really bad cold or even the flu, but I was used to being sick and fighting through it, so I didn’t think much about it. I started antibiotics while I continued going to school and playing basketball. I would start to feel better for a while, then BOOM, it would hit me like lightning again. I would take more antibiotics and continue my life as usual. I thought I was tough.
Bone Marrow Disease(s):
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