Sara Faces Down Aplastic Anemia
Person's Name:
Sara Scotti
Bone Marrow Disease(s):
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eBulletin / eInsider (story of hope)
Young Minnesotan Opens Up About Dual Diagnosis and Emphasizes Emotional Wellness
Person's Name:
Sarah Nesheim
My Diagnosis
In the summer of 2014 I noticed ongoing bruising all over my body. At first, I thought it might have to do with my diet (low iron), but soon I noticed a new kind of mark on my skin, almost having a bulls-eye appearance. By end of summer I knew I had to do something about this.
Bone Marrow Disease(s):
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Faith and a fully matched sibling help beat back severe aplastic anemia
Person's Name:
Valerie Diaz
In October 2017 I was hospitalized for extreme dizziness, vomiting, fatigue, bruising, and shortness of breath. As an active, healthy person, having these symptoms was worrisome. My husband took me to the emergency room, where they performed a series of tests. We waited for my results, and a nurse looked at me and asked if I realized how pale I looked, and neither my husband or I had even noticed.
Bone Marrow Disease(s):
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Paige Cranwell: "My Half-Match Miracle"
Person's Name:
Paige Cranwell
In May 2017, life was good and I was “living the dream”. I had been working full time for about a year after graduating from the University of Kentucky. I was living in Columbus, Ohio, working for an organization that supports children with childhood cancer and catastrophic disease. Everything was on track for my future.
I started to feel sick. At first it seemed like flu-like symptoms of fatigue, racing heartbeat, lack of energy and some bruising that just wouldn’t go away.
Bone Marrow Disease(s):
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Aplastic Anemia and Treatment-Related Complications Influence Career Choice
Person's Name:
Bridget Daw
In December 1992, I was an 8-year-old, halfway through second grade, when strep throat and a urinary tract infection just wouldn’t go away. A late-night trip to the emergency room revealed dangerously low levels of platelets, which explained this and the severe bruising all over my body and rashes on my joints. My platelets were under 2,000 and I was supposed to have 250,000.
Bone Marrow Disease(s):
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Patient Trusts Her Instincts in Finding the Right Treatment
Person's Name:
Sherry Pratt
I never thought I would be diagnosed with cancer. I taught exercise classes, walked every day, ate a Mediterranean diet, and paid attention to products I used on my skin. I became a certified health coach and taught healthy living classes.
Bone Marrow Disease(s):
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I Was Alone With MDS Until I Connected With Others on Social Media
Person's Name:
Jane Biehl, PhD
I sat quietly in the oncologist’s office. The doctor confirmed that my diagnosis was MDS and calmly stated, “The average survival term for your kind of MDS is 104 months.” I felt the room spin.
I never have been healthy, and suffered from upper respiratory infections all my life. Kidney and bladder infections plagued me all through college, and I have had a severe hearing loss since birth. I had been diagnosed in 1986 with an IGA deficiency, meaning that I had insufficient immunity although I was treated symptomatically with antibiotics when needed.
Bone Marrow Disease(s):
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Confronting Challenges in Finding Matches for Multiracial Patients
Person's Name:
Krissy Kobata
34-year-old Krissy Kobata is a passionate patient and advocate/activist. Diagnosed in 2008 with MDS, she’s the epitome of resilience as she has waited for years to find a matched donor. She has devoted this time to helping other patients by enlarging the Be The Match® bone marrow registry.
Bone Marrow Disease(s):
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Updates from John and Isabella!
Person's Name:
John Vasquez, Part 2
Part 1
Bone Marrow Disease(s):
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As Patient Advocate, Emma Makes New Friends
Person's Name:
Emma's Story, Part 2
When Emma was still being seen at the NIH twice a week, we were talking with her physician’s assistant about her t-shirt fundraiser and her Facebook group. After hearing what Emma was doing with these activities, they asked her to be their new pediatric patient advocate, helping newer pediatric patients with advice on how to cope with treatments. This seemed to be another way we could help.
Bone Marrow Disease(s):
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