Aplastic Anemia, MDS, PNH Virtual Support Group-Saturdays-2026 April
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious co
Aplastic Anemia
Inhibiting ferroptosis enhances ex vivo expansion of human haematopoietic stem cells
Original Publication Date
Article Source
External Web Content
Abstract Improved ex vivo expansion of human haematopoietic stem cells (HSCs) would considerably advance transplantation and genome-engineered therapies, yet existing culture methods still allow substantial HSC loss. Here we show that this attrition is driven largely by…
Managing Quality of Life Considerations for Patients with Bone Marrow Failure
Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Erin Kopp, DNP
This 30-minute webinar reviews the range of opportunities for health care providers to incorporate quality of life considerations with bone marrow failure patients and their caregivers. Assessing resources needed for patients and communicating with the entire health care team…
Coordinating Care for Patients With Bone Marrow Failure
Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Beena Mathew, MSN, OCN, RN
This informative 30-minute webinar provides practical recommendations for how health care providers can coordinate care for their bone marrow failure patients. Communication among members of the entire health care team managing these patients will also be discussed. This webinar…
AAMDSIF Resources for Health Professionals
Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Bhumika Patel, MD
Dr. Patel discusses how health care providers, especially those in community settings, can connect patients with aplastic anemia, MDS, or PNH with AAMDSIF patient education resources and support. View, download, or order AAMDSIF patient guides and fact sheets here: https://www…
Transplantation Updates - 2025 Bone Marrow Failure Symposium: Disease Updates and Health Equity
Presenter(s)
Julio Alvarenga Thiebaud, MD.
Clayton Jackson, MD
Hetalkumari Patel, PharmD, BCOP.
Amir Toor, MD
Addresses the barriers of ageism, geographic and cultural challenges, delays in diagnosis, limited English proficiency, financial toxicity, and long-term supportive care in pathophysiology, diagnosis, and clinical management of bone marrow failure diseases. For more recordings…
Donor Age and Pre-Transplant Transfusion Burden Independently Predict GVHD and Relapse-Free Survival (GRFS) in Aplastic Anemia
Original Publication Date
Article Source
External Web Content
Abstract Allogeneic hematopoietic stem cell transplantation (HSCT) is a curative option for aplastic anemia (AA), especially in younger patients with matched sibling donors (MSD). However, in low-resource settings, delayed access to HSCT and pre-transplant complications can…
Expanded umbilical cord blood transplant achieves 94% survival in severe aplastic anemia patients
Original Publication Date
Article Source
External Web Content
NIH clinical trial shows promise for people with treatment-limited, life-threatening disorder. A clinical trial at the National Institutes of Health (NIH) has shown that an experimental treatment for patients with severe aplastic anemia resulted in a 94% survival rate without…
ASH 2024 Research Summaries (Aplastic Anemia and PNH)
This publication offers summaries of selected abstracts presented at the Annual Meeting of the American Hematology Society held in December 2024. It provides new and updated information about research into the diagnosis…
Health Equity for Non Transplant Treatment Panel Discussion
Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Presenter(s)
Eileen Hu, MD, PhD
Yazan F. Madanat, MD
Addresses the barriers of ageism, geographic and cultural challenges, delays in diagnosis, limited English proficiency, financial toxicity, and long-term supportive care in pathophysiology, diagnosis, and clinical management of bone marrow failure diseases. For more content like…