Active Middle-Schooler's Life Sidelined by Severe Aplastic Anemia - Phoenix's Story
Cheer, music, sports, plays, community. These dominated Phoenix’s life in the autumn of last year.
Aplastic Anemia
Transplant and GVHD: Aplastic Anemia and PNH - 2025 San Francisco Bay Area Conference
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
Presenter(s)
Judith Shizuru, MD
Dr. Judith Shizuru explains how Transplantation can be used to treat Aplastic Anemia and PNH. She discusses how GVHD, or Graft VS Host Disease, can occur after transplant as well.
23-Year Aplastic Anemia Survivor Speaks - 2025 San Francisco Bay Area Patient/Family Conference
Topic(s)
Aplastic Anemia
What do you go through to treat of Aplastic Anemia? What is life like afterwards? What kind of life can you lead? Kinsey describes her journey in this recording from the 2025 San Francisco Bay Area Patient and Family Conference.
Clinical Trial Clinical Trial: A type of research study that tests how a drug, medical device, or treatment approach works in people. There are several types of clinical trials. Treatment trials test new treatment options. Diagnostic trials test new ways to diagnose a disease. Screening trials test the best way to detect a disease or health problem. Quality of life (supportive care) trials study ways to improve the comfort of people with chronic illness. Prevention trials look for better ways to prevent disease in people who have never had the disease. Trials are in four phases. Phase I tests a new drug or treatment in a small group to see if it is safe. Phase II expands the study to a larger group of people to find out if it works. Phase III expands the study to an even larger group of people to compare it to the standard treatment for the disease; and Phase IV takes place after the drug or treatment has been licensed and marketed to find out the long-term impact of the new treatment. CureAA: Clinical Trial of Upfront Haploidentical or Unrelated Donor BMT to Restore Normal Hematopoiesis in Aplastic Anemia
Image
Status
Recruiting
Study Date (Range)
-
Bone Marrow Disease(s)
Aplastic Anemia
Age Group
3 years to 75 years
This is a Phase II study of hematopoietic stem cell transplantation for previously untreated patients with severe aplastic anemia. This study is comprised of two cohorts - patients receiving haploidentical donor transplant and patients receiving unrelated donor transplant. The…
Treatment patterns and blood count control in 10,112 patients with polycythemia vera
Original Publication Date
Article Source
External Web Content
ABSTRACT Background Elevated blood counts in polycythemia vera (PV) are associated with increased thrombotic risk, which contributes to morbidity and mortality. Research design and methods This retrospective study describes treatment patterns and blood count control in patients…
Nutrition for Patients with Aplastic Anemia, MDS, or PNH
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
In this webinar, Kylie Chen, Registered Dietitian, discusses common nutrition challenges and evidence-based strategies to improve nutritional status and learn easy nutrition swaps.
Advances in Aplastic Anemia
Topic(s)
Aplastic Anemia
Presenter(s)
Sally Arai, MD
In this webinar, Dr. Sally Arai discusses the latest in treating aplastic anemia and what is on the horizon.
Impact of HLA alloimmunization on clinical outcomes of severe aplastic anemia treated with immunosuppressive therapy
Immune aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, w
Aplastic Anemia Virtual Support Group - 2026 March
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious co