Myelodysplastic Syndromes (MDS)

Linda Burns, MD

Institution
Center for International Blood & Marrow Transplant Research (CIBMTR)
Physician Status
available for consultation
Primary Disease Area of Focus
Myelodysplastic Syndromes (MDS)

Research Identifies How Gene Mechanisms Influence Pediatric MDS

Original Publication Date
Article Source
External Web Content
Each year, approximately 1 in every 1 million infants is diagnosed with pediatric myelodysplastic syndromes (MDS), a group of rare disorders characterized by the abnormal or deficient formation of blood cells in the bone marrow. However, researchers wanted to understand the…

Clonal Evolution in Aplastic Anemia

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Topic(s)
Aplastic Anemia
Presenter(s)
Emma Groarke, MD, FRCPath
In this webinar, Dr. Emma Groarke will discuss what is clonal evolution and potential impact for patients with aplastic anemia. She will answer questions from participants at the end of the presentation.

Emma Groarke, MD, FRCPath

Institution
National Lung, Heart and Blood Institute (NLHBI)
Physician Status
available for consultation
Primary Disease Area of Focus
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pure Red Cell Aplasia (PRCA)
About
Dr. Emma M. Groarke is a hematologist in Bethesda, Maryland at the National Lung, Heart and Blood Insititute. She received her medical degree from University College of Dublin. Dr. Groarke research involves Clinical trials in acquired and inherited bone marrow failure.

Genetic Testing for Bone Marrow Failure Diseases

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Jadee Neff, M.D., Ph.D., FCAP
In this webinar, Dr. Jadee Neff discusses how genetic testing used in the diagnostic process, how it can help identify possible causes of disease that inform decisions regarding appropriate therapies, identify potential donors for bone marrow transplant, and potential risk for…

Tulsa (OK) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This virtual group meets on the second Thursday of every month from 3:30 to 4:30pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/411v9rzz9r/index.html

Columbus (OH) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This virtual group meets on the fourth Tuesday of every month from 6:30 to 8:00pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/form192/index.html
This group is facilitated by Angie Santangelo.

Website Feedback

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