Paroxysmal Nocturnal Hemoglobinuria (PNH)

Letter on the Bipartisan Senate FY25 Labor-HHS-Education Appropriations Bill

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AAMDSIF is Taking a Stand for NIH Research Research programs led by the National Institutes of Health (NIH) forge the way for life-saving new treatments for rare diseases such as aplastic anemia, MDS, and PNH. With clinical research locations throughout the U.S., researchers and…

Health-related quality of life and symptom-specific functional impairment among patients treated with parenterally administered complement inhibitors for paroxysmal nocturnal hemoglobinuria

This study describes the health-related quality of life (HRQoL) and symptom-specific functional impairment of patients with

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