2024 Seattle Patient and Family Conference
Watch these recordings from the Conference Sessions:
Paroxysmal Nocturnal Hemoglobinuria (PNH)
2024 Los Angeles Patient and Family Conference
2024 Patient and Family Conference in Los Angeles
Session Recordings:
Transplant for Aplastic Anemia and MDS
PNH Patient Panel
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
In this webinar, patients diagnosed with PNH discuss their patient journey and share their personal experiences.
Integrative Medicine
Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Nathan R. Handley, MD
In this webinar, Dr. Nathan Handley discusses what is integrative medicine and how it can be part of your treatment plan. He answers audience questions in the recording.
Caregivers - Take Care but HOW????
Topic(s)
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Jane Meier Hamilton, RN, MSN
In this webinar, Jane Hamilton discusses how and why it is important for caregivers to practice self care. The entire interactive session was recorded.
Progress in the Management of Pregnancy with Paroxysmal Nocturnal Hemoglobinuria: A Review
Paroxysmal nocturnal hemoglobinuria Paroxysmal nocturnal hemoglobinuria: (pa
Efficacy of complement inhibitors for patients with paroxysmal nocturnal hemoglobinuria: a systematic review and meta-analysis
Background: Paroxysmal nocturnal hemoglobinuria Paroxysmal nocturnal hemoglobinuria:
Paroxysmal Nocturnal Hemoglobinuria
Paroxysmal nocturnal hemoglobinuria Paroxysmal nocturnal hemoglobinuria: (pa
Paroxysmal Nocturnal Hemoglobinuria: Current Management, Unmet Needs, and Recommendations
Paroxysmal nocturnal hemoglobinuria Paroxysmal nocturnal hemoglobinuria: (pa