Participate in Research
Patients can make a difference in the development of future treatments and the improvement of outcomes by participating in research. Check out the sections here to discover if any of these options are suitable for you.
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Understanding Clinical Trials
Clinical research Clinical research: A type of research that involves individual persons or a group of people.
Advice for Caregivers
The National Family Caregivers Association's Director of Caregiver Wellness Programs, Jane Meier Hamilton, RN, MSN, has been a nurse for 40 years and family caregiver for 20 years. In a recent interview, she offered advice for family caregivers.
Is it true to say that many people don’t realize that they are caregivers?
Fundraise
Raising money for AAMDSIF through fundraising events also raises awareness for rare bone marrow failure bone marrow failure: A condition that
PNH - A Patient Panel Discussion
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
PNH patients discuss their PNH journey by sharing their stories and answering questions from other PNH patients.
Ways to Give
Your financial donation is the best way to ensure patients get the support they need. There are several creative ways you can give.
Medical Research Basics
Learn about the process to bring new therapies and treatments to patients.
Here are explanations of why and how research is developed, the different types of research involved, and how registries are used to improve the lives of patients.