A Story of Hope
“Faith, hope and endurance are imperative to living a life full of possibilities with PNH,” says Emma Pritchett, who has lived with paroxysmal nocturnal hemoglobinuria
Paroxysmal Nocturnal Hemoglobinuria (PNH)
End-of-Life Resources
The Aplastic Anemia Aplastic Anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, whit
David Margolis, MD
Institution
Children’s Hospital of Wisconsin
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric
About
David Margolis, MD, received his medical degree from the University of Wisconsin-Madison in 1989. He is currently a professor of pediatrics at the Medical College of Wisconsin, located in Milwaukee, and is program director of Children’s Hospital of Wisconsin’s Blood and Bone Marrow Transplant Program. His clinical and research interests include taking care of children and young adults with aplastic anemia as well as alternative donor blood and bone marrow transplants for children and young adults with aplastic anemia, sickle cell anemia and leukemia.
Blood Transfusion Safety and Risks
Negative side effects of blood transfusion therapy are uncommon. Blood banks, hospitals, and health-care providers take many precautions to minimize risks before each blood transfusion.
Blood banks test each unit of blood to find out its ABO type and Rh status. In the United States, after a hospital laboratory receives a blood unit from the blood bank, the laboratory tests the unit again.
Types of Blood Transfusions
The parts of blood used in a transfusion depend on why the patient needs the transfusion.
Bone Marrow and Stem Cell Transplantation
If you have a bone marrow failure disease like aplastic anemia, MDS or PNH, and your doctor thinks you may be a candidate for a bone marrow or stem cell tra
AAMDSIF Summer Fellowship Grant Program
2017 Summer Fellowship Grantee
Gabriela Sanchez Petitto
Gail J. Roboz, M.D.
Institution
New York Presbyterian Hospital
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Gail J. Roboz, M.D. is a professor of medicine and Director of the Clinical and Translational Leukemia Programs at the Weill Medical College of Cornell University and the NewYork Presbyterian Hospital in New York City. Dr. Roboz graduated summa cum laude from Yale University and received her medical degree from The Mount Sinai School of Medicine in New York, where she was elected to the Alpha Omega Alpha Honor Medical Society and achieved the highest academic standing in the graduating class. She completed her internship in internal medicine at The Beth Israel Hospital in Boston and a
Amer Zeidan, MBBS
Institution
Yale University and Yale Cancer Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Amer Zeidan’s primary research interest is in myelodysplastic syndromes (MDS) and was mentored in this research area by Dr. Steven Gore and Dr. B Douglas Smith at Johns Hopkins University where he has completed a clinical hematology/oncology fellowship and a clinical research fellowship in myelodysplastic syndromes. He also earned a Master of Health Science (MHS) degree in Clinical Investigation at Johns Hopkins before recently moving to Yale University as an Assistant Professor of Medicine to reunite with Dr. Steven Gore and continue his MDS research. Dr. Zeidan has two major areas of
Patient, Educator, and Volunteer
A PNH survivor for more than 25 years, Stephen King speaks about his life as a patient and an advocate in both formal and informal roles -- and offers advice for newly diagnosed PNH patients.
“I’m an engineer with a problem-solving orientation,” says the medical software manager from Atlanta, Georgia. “After my diagnosis, I thought, now that you know what it is, let’s fix it. It took a little time to sink in that there was no quick fix, and I had to learn more about it.”
Early Diagnosis, Treatment and Emphasis on Self-Advocacy