Paroxysmal Nocturnal Hemoglobinuria (PNH)

What is PNH?

PNH (paroxysmal nocturnal ) is a very rare blood disease that causes red blood cells to break apart. PNH occurs because of a genetic change to some of your blood-forming . These defective stem cells become PNH blood cells that are missing an important coating (protein) that protects them from your immune system. If you have PNH, there will be times when your immune system destroys many red blood cells very quickly, causing low counts, as well as blood clots, muscle spasms and dark urine. This destruction of blood cells is called . 

Emotional Health

Coping Emotionally with Bone Marrow Failure Disease

A disease diagnosis is unquestionably a difficult life event. Nevertheless, many patients develop a positive attitude about managing stress and undergoing treatment - and you can too.

Exercise

Why Exercise?

The many benefits of regular exercise have been known for years, and each year new research data supports this.

Apart from enhancing overall health and quality of life, exercise improves physical functioning of your body, improves efficiency of heart and  lungs, strengthens and firms muscles, and reduces tension, anxiety and depression.

PNH: Diagnosis

How does my doctor know I have PNH?

PNH is a rare disease. Many doctors have never seen a case of it. So people with PNH may have symptoms for several years before they get a correct diagnosis.

3 Types of Blood Cells

With PNH, your doctor can usually divide your blood cells into 3 types:

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