Aplastic Anemia, MDS, PNH Virtual Support Group-Saturdays-2024-December
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious co
Graft Versus Host Disease (GVHD)
Fatigue Management
Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Timothy Pearman, PhD
Jenny Finkel
In this webinar, Dr. Tim Pearman discusses fatigue and how it can be best managed. Jenny Finkle demonstrates some gentle exercises you can do to increase your energy level. This was an interactive session.
GVHD (Graft VS Host Disease) - 2024 Philadelphia Patient and Family Conference
Topic(s)
Bone Marrow Transplant
Pashna N. Munshi, MD, describes the strategies that bone marrow transplant teams use to prevent GVHD, or Graft VS Host Disease. She also discusses prevalent treatments to help patients who develop this condition.
What is my Diagnosis? From the 2024 Seattle Patient and Family Conference
Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Bart Scott, MD
Dr. Bart Scott explains the diagnosis bone marrow failure diseases in this session from the 2024 Patient and Family Conference in Seattle, WA.
Nutrition and Bone Marrow Failure
Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Acute Myeloid Leukemia (AML)
In this webinar, Doris Piccinin, registered dietician, will discuss how diet can play a role in living well with a bone marrow failure disease. You can submit questions in advance by emailing help@aamds.org.
Blood Transfusions and Iron Overload
Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
In this webinar, Dr. Thomas Coates will discuss blood transfusions and the potential side effect, iron overload. You may submit questions in advance by emailing help@aamds.org.
Managing Low Blood Counts - 2023 New Haven Patient and Family Conference
Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Lisa Barbarotta, MSN, APRN-BC, AOCNS
Lisa Barbarotta describes techniques to help manage low blood counts in this session.
Getting the Right Diagnosis - 2024 New Haven Patient and Family Conference
Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Dr. Mina Xu discusses the steps involved in developing an accurate diagnosis for bone marrow failure diseases.
Palliative Care - 2024 Los Angeles Patient and Family Conference Session
Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Finly Zachariah, MD
Finly Zachariah explains how and why treating pain issues during treatment can be beneficial to patients in this session from the 2024 Los Angeles Patient and Family Conference Session.
Supportive Care Management - 2024 Los Angeles Patient and Family Conference
Topic(s)
Managing Your Treatment
Presenter(s)
Erin Kopp, DNP
Erin Kopp explains strategies for dealing with pain and other issues for patients with bone marrow failure diseases in this session from the 2024 Los Angeles Patient and Family Conference.