Fundraise
Raising money for AAMDSIF through fundraising events also raises awareness for rare bone marrow failure bone marrow failure: A condition that
Graft Versus Host Disease (GVHD)
Ways to Give
Your financial donation is the best way to ensure patients get the support they need. There are several creative ways you can give.
Medical Research Basics
Learn about the process to bring new therapies and treatments to patients.
Here are explanations of why and how research is developed, the different types of research involved, and how registries are used to improve the lives of patients.
2023 Salt Lake City Patient and Family Conference
Thank you for attending the 2023 Salt Lake City Patient and Family Conference. We will keep uploading presentations as we receive them, please keep checking back for updates.
Presentation Materials:
Predisposition to Inherited Bone Marrow Failure Syndromes
Aplastic Anemia and Non-Transplant Therapies
Patient Panel: Addressing Patient Challenges and Barriers - Patient & Family Conference Utah 2023
Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Watch this informative patient panel from the 2023 Patient and Family Conference in Salt Lake City, Utah. This session was led by Jill Gahlsford, RN, of Huntsman Cancer Institute.
Living with GVHD, or Graft Versus Host Disease, from the Patient and Family Conference Utah 2023
Topic(s)
Bone Marrow Transplant
Managing Your Treatment
Presenter(s)
Sagar S. Patel, MD
Sagar Patel, MD, Huntsman Cancer Institute, explains this post-transplant condition and its treatments. Watch to learn more about techniques used to prevent GVHD as well as short-term and long-term complications.
Survivorship: Life after Diagnosis - 2023 Omaha Patient and Family Hybrid Conference
Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Watch this session to learn techniques for coping after the diagnosis of a bone marrow failure disease such as aplastic anemia, MDS, or PNH. The session is useful for all bone marrow failure disease patients.
Alicia Rovó, MD
Institution
Bern University Hospital
Physician Status
accepting new patients
Primary Disease Area of Focus
Aplastic Anemia
Graft Versus Host Disease (GVHD)
About
Alicia Rovó is a Senior Attending/ Deputy Phychian-in-chief and Head of the Clinial Hematology Unit at Bern University Hospital in Switzerland. Her top areas of expertise are Aplastic Anemia, Anemia, Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Bone Marrow Aspiration.
Sandeep Jain, MD
Institution
University of Illinois College of Medicine
Physician Status
accepting new patients
Primary Disease Area of Focus
Graft Versus Host Disease (GVHD)