Pediatric

Health-Related Quality of Life, AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium

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Presenter(s)
Namrata Chandhok, MD
Thomas LeBlanc, MD, MA
Fabio Efficace, PhD
Alison R. Kavanaugh
Pamela C. Egan, MD
Wil L. Santivasi, MD
The session was recorded at the AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium, Co-Chairs Namrata Chandhok, MD, and Thomas LeBlanc, MD, MA Topics and speakers included: How can we measure quality of life in MDS, to inform interventions? - Fabio Efficace, PhD…

Non-Transplant Therapies for Marrow Failure, AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium

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Presenter(s)
Carlos DeCastro, MD
Phil Scheinberg, MD
Regis Peffault de Latour, MD, PhD
Julian Sevilla, MD, PhD
Kasiani Myers, MD
Suneet Agarwal, MD, PhD
This session was presented at the AAMDSIF 2026 International Bone Marrow Failure Scientific Symposium; Co-Chairs Carlos DeCastro, MD, and Phil Scheinberg, MD, PhD. Session topics included: -Androgens, alemtuzumab, anti-cytokine therapies (anti-IL2R, anti-IFN gamma), daratumumab…

Julia T. Warren, MD, PhD

Institution
Children's Hospital of Philadelphia
Physician Status
accepting new patients
Primary Disease Area of Focus
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric
About

Julia T. Warren, MD, PhD, joined Children's Hospital of Philadelphia in fall 2022. She is a hematologist with the Division of Hematology and the Pediatric Comprehensive Bone Marrow Failure Program.

Inhibiting ferroptosis enhances ex vivo expansion of human haematopoietic stem cells

Original Publication Date
Article Source
External Web Content

Abstract Improved ex vivo expansion of human haematopoietic stem cells (HSCs) would considerably advance transplantation and genome-engineered therapies, yet existing culture methods still allow substantial HSC loss. Here we show that this attrition is driven largely by…

Managing Quality of Life Considerations for Patients with Bone Marrow Failure

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Erin Kopp, DNP

This 30-minute webinar reviews the range of opportunities for health care providers to incorporate quality of life considerations with bone marrow failure patients and their caregivers. Assessing resources needed for patients and communicating with the entire health care team…

Coordinating Care for Patients With Bone Marrow Failure

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Beena Mathew, MSN, OCN, RN

This informative 30-minute webinar provides practical recommendations for how health care providers can coordinate care for their bone marrow failure patients. Communication among members of the entire health care team managing these patients will also be discussed. This webinar…

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