Pure Red Cell Aplasia (PRCA)

Caregivers: What to Expect When Your Loved One is Diagnosed

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
COVID-19
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Acute Myeloid Leukemia (AML)
Presenter(s)
Swapna Thota, MD
In this webinar, Dr. Thota will discuss what caregivers can expect when their loved one is diagnosed- symptoms and side effects of disease and treatments.

Medicare Made Simple- What is New in 2024?

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Program participants will learn the basics of Medicare including how and when to enroll, the different parts of Medicare, the difference between Advantage and Supplement plans and what original Medicare does not cover, eligibility, how to avoid penalties, when to qualify for…

Volunteer

AAMDSIF depends on the commitment, creativity, talent and energy of its volunteers. They are our local ambassadors, and we rely on their event organizing skills to support patients, family and friends in their community.

What are Registries?

In the medical field, registries are systematic collections of data related to specific diseases, conditions, or treatments. They are databases designed to gather and store detailed information about patients' medical histories, diagnostic information, treatments, outcomes, and various other factors. The primary goal of medical registries is to advance medical research, improve patient care, and enhance healthcare practices by providing comprehensive and reliable data.

Types of Research

Medical research is classified into primary and secondary research. There are three main types of primary research: basic (experimental), clinical, and epidemiological research. Secondary research provides a summary of available studies through reviews and meta-analyses. 

The Medical Research Process

The medical research process is a structured and methodical approach used to generate new knowledge and insights about various aspects of medicine and healthcare. It involves several stages, each aimed at addressing specific research questions, testing hypotheses, and contributing to advancements in medical science. Below are components of the typical medical research process:

Corporate Partners

AAMDSIF receives support from corporate partners who invest in advancing our mission. Thanks to their financial contributions, we are able to provide answers, support, and hope to patients, their families, and healthcare professionals entrusted with providing quality care.

AAMDSIF Corporate Partners provide financial and in-kind support of programming through sponsorships and grants. AAMDSIF program content and speakers are created and managed by AAMDSIF staff in partnership with our Patient Advisory Council and Medical Advisory Board.

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